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Thread: Finally, a good doc!!!

  1. #1
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    Default Finally, a good doc!!!

    Hi. I just wanted to share a good story about WG. I was in remission for about 11 years and then came out. My gp sent me to a rheumatologist who didnt really know the disease very well. She was very nice, but on my last appointment admitted that I was a bit of a mystery and very intriguing. This did not instill confidence. So, I decided it was time to find a new rheumy and contacted the vasculitis foundation to ask for a recommendation. Im in Manhattan KS and the foundation is basedin Kansas City (luckily). So the woman who answered the phone at the foundation told me of a rheumy in KC who knows the disease well. Said her dad has WG and sees her. It was so refreshing to talk to a doc who really knew the ins and outs of Wegeners. If any of you doubt your current docs, dont hesitate and call the foundation for a referral. They have lists of docs all over the country.

  2. #2
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    I'm so happy you switched docs. I can now remove you from my "Must Nag About Getting A Wegs Doc" list.

  3. #3
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    Yes. You may now remove me from that list. Very happy to have found her!

  4. #4
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    Awesome! good WG docs are hard to find!
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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