Good morning Alysia, it's 0845 UK time.
I'm in bed with my tablet replying to a few new posts. As you know I've got a few things going on at once.
Firstly my WG. Yesterday, if anything, could be seen as an improvement as my nose wasn't bleeding much, quite a suprise considering it had understandably been worsening since I started the anticoagulants. Otherwise much the same - very tired, but not 1 WG related symptom had got any worse, so a good day really.
Secondly my frustrating heart arrythmias and eptopic beats. I had a very good day with mild, infrequent issues. I'm not holding my breath as occasionally I do have an improved day, but maybe the treatment to bring my potassium levels down has helped, or the anticoagulant drugs. The scary thing is that when I do get the painful, struggling pump feeling, it feels like how I'd imagine it would be like if a piece of my blood clot has just broke off and entered my heart.
Finally my leg and DVT/blood clots. I went for a blood test and my INR level is only at 1 so I have to continue with the jabs and tablets. I mentioned that I was concerted as my leg is rapidly increasing in size and is getting much more painful. The nurse was concerned, but said there is no other treatment than what I'm already on.
The last time I had a DVT wasn't as severe as this one and it left a lot of permanent damage. I hate to think how bad my leg is going to get before it starts to settle back down.
It seems crazy that a couple of days after I reply to a post on here about somebody who had a serious blood clot, I end up with a massive one, thankfully not in my heart or lungs though.
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