Quote Originally Posted by mishb View Post
Aww Gilders, I'm sorry WG may have taken hold again

I'm struggling though, to understand why you wouldn't want to start on some treatment straight away, if, everytime you relapse, your kidneys get worse.
Wouldn't it be better to start the meds so that your kidneys have, at least, a fighting chance ??
Hi Michelle, let me explain why I was putting off treatment.
Firstly if there is definitive proof that I was having a flare/relapse then I would not hesitate in receiving treatment.
The reason I wanted to hold off treatment was when I wasn't 100% certain that I was having a relapse. The reason being that if the meds can damage my kidneys, I'd hate to think that I've killed off my kidneys with medication that might not have been needed.

With my symptoms and positive ANCA results, it was always likely that I was at the start of a flare. I truly believed that the only chance my kidneys had was if I kept off meds and weren't having a relapse, however unlikely it was.

I never refused treatment, but I did let my specialist know that I wanted to re-start treatment when there was proof of a relapse, not just signs and indications.