Positive nasal biopsy

**gilders** · 09-28-2013, 03:11 AM

Hello everyone. For those that have read my posts, you've probably read my current situation. I have had a positive ANCA for the last 11 months. I've also being suffering with symptoms that would suggest a relapse. Most of you have given me the impression that I should be back on treatment. I had my reasons for holding off on the treatment, mostly due to renal issues, but in this case I think you were right.
The exact words from the email my specialist sent were "The biopsy has come back showing likely Wegeners!"
I guess "showing likely Wegeners!" isn't definitely Wegener's, but with my symptoms and positive ANCA, putting off treatment any longer would be risking it too much!
I'm due to see him next Thurs morning. I'll keep you all updated.
We are all different, but when I have a relapse my kidneys have received further damage each time. My Dr has told me that 1 more relapse would be the end for my kidney's. I can cope with WG and it's treatment, but going back on dialysis until I receive a transplant is something I'm going to find very hard to deal with.

I've not resigned myself to losing my kidney and will fight all I can, but I'm also facing up to facts!

**annekat** · 09-28-2013, 03:27 AM

I'm very sorry to hear this, gilders. Do keep fighting, along with maintaining your realistic attitude! I'm hoping the treatment will not be as damaging as you might think..... or that your disease activity is not as high as to warrant the most damaging treatments..... I can only hope. And we will all be thinking of you, no doubt, and waiting to hear more. I wish the best possible outcome for you.

**Wegetarian** · 09-28-2013, 07:03 AM

Truly sorry to hear. Luckily I know your a tough mofo. I understand it must be a very stressful time for you, and I'll keep my thumbs up for your on Thursday. Keep us updated Gliders.

**gilders** · 09-28-2013, 07:59 AM

Thank you both. Hopefully I'll still be able to go on my 5 day Scotland vacation that I'm due to go on the Sunday after my appointment.

**Titus3:2** · 09-28-2013, 10:01 AM

We are rooting for you,and hope that biopsy is not positive after all.

**Alysia** · 09-28-2013, 07:11 PM

Hi Gilders,
I am so sorry that you are going through another hard time

but you are wg-veteran and you do know how to fight it

my c-anca was positive for years. (while "smoldering") so it should be alarming to treat but not too scary.
Is there any immediate risk to your kidneys now ?
RTX helped me like a miracle. asked your doc about it.
I am sending you my praying and wishes to feel better soon.
please update us.