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About to Receive 2 x 1000mg of Rituxan
Hi All,
I have a ANCA PR3 of 8 and and a crp of 120.
The doctors have me booked in for 2 x 1000mg doses of Rituxan.
Has anyone had this and did you get a long term remission or any releif from symptoms.
Not having cyclo as I still want more kids with my wife.
I am a bit worried but at this stage the inflammation is so high I have no choice.
Cheers.
Registered Member
Lot of us have had RTX and results will vary. All the meds take awhile to work their "magic" so patience is necessary while you wait to see the results. Results also vary but think positive and expect things will get better with treatment cause they usually do.
Last edited by drz; 09-25-2013 at 03:16 PM.
Knowledge is power! Wisdom is using it to make good decisions!
Registered Member
Most research suggest that RTX is superior to cyclo. It is more direct than cyclo, so causes less unwanted side effects.
I think the only reason why RTX would not be used as first choice (unless you've previously had a reaction to it) is the cost.
All medication has risks, but I'd personally think RTX is the best way to tackle WG at the moment.
Diagnosed April 1995
Registered User
All I say is be patient. The first time it took about 6-8wks for me to feel any better and I was low down and sick as ever. The second time I bounced back in about 4wks. This last time I didn't have any Wegenerish symptoms but they did it for remission. I believe it is a lifesaver.
Wannabe jet pilot
I'm kind of in the same boat with you. My wegs specialist in Cleveland has recommended the same treatment. I'll be working with my nephrologist here in Columbus and new insurance carrier. Could get interesting in that regard. I did 16 months of cyclo after dx, so that drug is no longer an option. (My wife and I are in our mid-60s, so family planning wasn't a concern.)Originally Posted by Cekmsover
Hi All,
I have a ANCA PR3 of 8 and and a crp of 120.
The doctors have me booked in for 2 x 1000mg doses of Rituxan.
Has anyone had this and did you get a long term remission or any releif from symptoms.
Not having cyclo as I still want more kids with my wife.
I am a bit worried but at this stage the inflammation is so high I have no choice.
Cheers.
Let's keep each other up-to-date on how our treatments go.
Good luck and better health.
Last edited by Pete; 09-25-2013 at 11:47 AM. Reason: Added info and correct spelling errors
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
addicted user ;-)
Hi,
rtx is a miracle. at least for me. here is a link about it:
http://www.wegeners-granulomatosis.c...s-my-list.html
good luck ! and update us how it works for you.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
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