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Thread: Pain in hands and hips

  1. #31
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    i agree with you Phil Advil can damage the kidney

  2. #32
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    Been having those sometimes, pains in my hips, toes, fingers, knees and feet, basically if there is a joint i get pain there from time to time. my weg doctor last week mentioned when i complained on the phone that the symptoms are "Gout like" which is a possibility (kidney´s not processing uric acid properly i think is the cause), and will be checked better the next time i see him...but i live 800 km away so on my next visit i hope the simptoms are still /again present (btw suppoedly potassium helps with gout)

    best regards from iceland

  3. #33
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    Welcome hgustafs!!!!! I think you are our first member from Iceland!!!! I have always wanted to visit Iceland. It is so beautiful there.
    Phil Berggren, dx 2003

  4. #34
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    Quote Originally Posted by hgustafs View Post
    Been having those sometimes, pains in my hips, toes, fingers, knees and feet, basically if there is a joint i get pain there from time to time. my weg doctor last week mentioned when i complained on the phone that the symptoms are "Gout like" which is a possibility (kidney´s not processing uric acid properly i think is the cause), and will be checked better the next time i see him...but i live 800 km away so on my next visit i hope the simptoms are still /again present (btw suppoedly potassium helps with gout)

    best regards from iceland
    Potassium may help gout, but if the cause of the gout is due to build up of uric acid from poor kidney function, then you should avoid potassium.
    Diagnosed April 1995

  5. #35
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    800km? Where do you go to see your doc?
    Phil Berggren, dx 2003

  6. #36
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    Quote Originally Posted by hgustafs View Post
    Been having those sometimes, pains in my hips, toes, fingers, knees and feet, basically if there is a joint i get pain there from time to time. my weg doctor last week mentioned when i complained on the phone that the symptoms are "Gout like" which is a possibility (kidney´s not processing uric acid properly i think is the cause), and will be checked better the next time i see him...but i live 800 km away so on my next visit i hope the simptoms are still /again present (btw suppoedly potassium helps with gout)

    best regards from iceland
    Wow, I think you are the first icelander i have seen on here! Welcome. Visiting Iceland was on my bucket list too before i got sick. I looked at several trips but never got there. Now I can't do the hiking and fishing i dreamed about.
    Knowledge is power! Wisdom is using it to make good decisions!

  7. #37
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    Quote Originally Posted by pberggren1 View Post
    800km? Where do you go to see your doc?
    I live in a small town on the east coast of iceland but my wegeners doctor is in Reykjavík aprox..800 km some of my simptoms include Pericarditis with pericardial effusion and usually with pneumonia at the same time with swollen joints and red eyes so when i call the local health care center and say hi they usually overreact, so i call my weg specialist in reykjavík and if the doctors here can help she calls them and then they call me

  8. #38
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    Quote Originally Posted by gilders View Post
    Potassium may help gout, but if the cause of the gout is due to build up of uric acid from poor kidney function, then you should avoid potassium.
    thanks for the reply

    I did not ask my doctor about potassium but i will when next i hear from her, but this is what she told me.

    to quote my doctor.. she says my kidneys are functioning fine,( which is by no way a given with wegeners ) but the amount of meds i have taken in the past 10 months could lead to a buildup of uric acid especially if i don´t consume enough fluids. and gout as a condition is fairly common and can easily be overlooked when the simptoms are relatively mild and you have wegeners. but i only got diagnosed last january so all of this is new to me!

    best regards from iceland

  9. #39
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    Quote Originally Posted by hgustafs View Post
    I live in a small town on the east coast of iceland but my wegeners doctor is in Reykjavík aprox..800 km some of my simptoms include Pericarditis with pericardial effusion and usually with pneumonia at the same time with swollen joints and red eyes so when i call the local health care center and say hi they usually overreact, so i call my weg specialist in reykjavík and if the doctors here can help she calls them and then they call me
    I sometimes forget how big Iceland is.......lol
    Phil Berggren, dx 2003

  10. #40
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    Heard from the infusion center at OSU today. Scheduled for rtx on 10/16 and 10/30. Waiting for new insuere's ok, but on the schedule anyway.

    Have been on a beautiful vacation the past couple of days. Staying at a beautiful b&b about 30 miles east of Columbus. Enjoying the company of dear friends, eating gourmet meals, enjoying the scenery, and playing with the owner's dog. Life is good!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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