User Tag List

Likes Likes:  0
Page 1 of 5 123 ... LastLast
Results 1 to 10 of 47

Thread: Pain in hands and hips

  1. #1
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,373
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default Pain in hands and hips

    For the past few weeks, I have had transient pain in my hips and hands. They are very sore for and motion is painful for a few days, and then things return to normal. Advil is what I've been taking for relief.

    I've been off pred for over 5 months. I take 15 mg/week of mtx and bactrim 3x/week. Otherwise, I feel fine.

    Anybody have similar experiences?
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  2. #2
    Join Date
    Apr 2013
    Location
    Crewe, Cheshire,UK
    Posts
    98
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Pete, I have been experiencing pain in my left hip for the past few weeks and I keep getting cramps in my hands. Seeing my consultant in a few weeks so will mention it to him. Still on a low maintenance dose of pred.
    Mike
    If you can't be positive be optomistic.

  3. #3
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,373
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Mike,

    I've had hand cramps in the past. I found that eating a banana every day plus 100 mg/day of potassium helped a lot.

    The pain I have in my right hand today is a deep soreness and pain (probably a 7 when 10 is unbearable) when I move my fingers. I was planning to play golf today, but I couldn't hold a club comfortably.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  4. #4
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,160
    Post Thanks / Like
    Mentioned
    36 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Pete, I am sorry for you to have such pains
    are this joints pains or others ?
    when I was in a bad state my fingers were aching but it was an issue of joints.
    are pains in hips connected to the kydneys ?
    what your doc say about it ?
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #5
    Join Date
    Oct 2009
    Location
    Surrey, UK
    Posts
    259
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Pete - sadly my experience is not good news. I have experienced this a couple of times and each time it has been the start of a flare. The challenge for me has been that the blood tests do not immediately reflect this and it takes a while before the consultant agrees - by this time I have usually started to feel quite low. As you know we are all different so I hope for your sake it is not the case for you.
    Best wishes, Peter

  6. #6
    Join Date
    Sep 2013
    Location
    England
    Posts
    829
    Post Thanks / Like
    Mentioned
    38 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Pete (from another Pete),
    WG has given me lots of "gifts" including rheumatoid arthritis. This could be the cause of your pain. I have had rheumatic pain for many years, so it does not immediately suggest a flare/relapse. I am currently in a situation where I might be at the start of a relapse due to many symptoms that suggest so. One of these symptoms being the rheumatoid arthritis is my foot has become so severe this last month that I now need a walking stick.
    The other areas where I get pain is hands and lower back/hips (like you). My knees are also effected.
    As Peter (above) states "we are all different so I hope for your sake it is not the case for you" Not only are we different from each other, but flares/relapses can present themselves differently each time on the same person.

  7. #7
    Join Date
    Jul 2010
    Location
    see map location in MN
    Posts
    4,374
    Post Thanks / Like
    Mentioned
    16 Post(s)
    Tagged
    0 Thread(s)

    Default

    I often get cramps in several parts of my body. Doctors tell me I have many reasons why they might occur so no idea of how to prevent them. I have learned though to not to try force a cramp out, especially in hands since that only tears tissue and makes things worse. Gentle massage around the area is only way to work them out. My hand cramps often seemed related to Dupytrens Contractures and the needle type of surgery helped. Now they have a newer surgery where they inject the offending cords with a super type meat tenderizer which dissolves the extra cords but when on pred it is too risky to try. My pain in joints was due to inflammation from Wegs and in my feet it was also misdiagnosed as plantar fasciitis. RA was ruled out but was under consideration for awhile too.
    Knowledge is power! Wisdom is using it to make good decisions!

  8. #8
    Join Date
    Jul 2010
    Location
    Blacklick, Oh
    Posts
    1,399
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Pete, I have the same thing. My hip and knee on my left side especially (But right side too sometimes) seem to get sore for periods then seems to recover. Also one of my thumbs gets annoyly stiff. I see Dr VF next week so I'm going to ask about that. At this point I almost feel like it's weather related, the colder weather the last few days is what I suspect, though honestly I have no idea.
    ~ Bob

  9. #9
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    Pete, stay away from Advil and stuff like that. Try Tylenol Arthritis and consult your Wegs doc ASAP.
    Phil Berggren, dx 2003

  10. #10
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Pete View Post
    Hi Mike,

    I've had hand cramps in the past. I found that eating a banana every day plus 100 mg/day of potassium helped a lot.

    The pain I have in my right hand today is a deep soreness and pain (probably a 7 when 10 is unbearable) when I move my fingers. I was planning to play golf today, but I couldn't hold a club comfortably.

    Pete, does your hand feel like it has been slammed in a car door??

    That's how I always described mine before pred got things under control.
    I think Peter could be right

    You may need to get it checked out
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

Page 1 of 5 123 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •