Weggie Doctors in Pacific Northwest

[GreenTara]

HI
I am looking for DOCTORS who know Wegener's or at least Vasculitis, I live in Seattle, WA

Any recommendations out there?

I've been getting care at Harborview Hopspital, and have some good doctors, BUT>>>>>

would love to find someone really "into" wegener's LOL

[annekat]

Hi, Green Tara,

I'm in Olympia and another forum member is in Shelton, just north of here. I make do with a local doc but this other member goes to UW med center where they have a rheumatology clinic and apparently some vasculitis experience. I will PM you with the name of his doctor, since he sent it to me in a PM. Don't know for sure that he would be any better than the doc you have, but worth consideration.

[Dirty Don]

How far are you willing to travel? Would your current doc be willing to consult with experts?

[pberggren1]

I'm sure there must be some Vasci doc in Seattle. It is a large population base. If I can have a Wegs doc in population of 450,000 and surrounding area of about 75,000 sq miles, then I'm sure Seattle has a few of them.

[annekat]

I'm sure there must be some Vasci doc in Seattle. It is a large population base. If I can have a Wegs doc in population of 450,000 and surrounding area of about 75,000 sq miles, then I'm sure Seattle has a few of them.

I agree with you, Phil, there must be some vasci docs in the area. It's just a matter of finding them. But I have my doubts whether they have seen as many Weggies as your doc has; I think you said 1000? Were you talking about your new doc or your old doc or both? It seems like a lucky fluke that there'd be such a Wegs doc within that sort of area given the overall lack of dense population in Canada. But then, I don't know much at all about Canada, and maybe I'm just thinking of the western part. Guess I need to look at the map again for Saskatchewan.

[pberggren1]

I am talking about my old doc. And it is not a lucky fluke that he came to my town. God answered my prayer a week from before he came that I wanted a Wegs doc. So God sent me a top Wegs doc. My new doc is the one that only has 30 Weggies.

[annekat]

I am talking about my old doc. And it is not a lucky fluke that he came to my town. God answered my prayer a week from before he came that I wanted a Wegs doc. So God sent me a top Wegs doc. My new doc is the one that only has 30 Weggies.

Oh yeah, now I remember you saying that about your new doc having 30 Weggies. There sure seem to be a lot of Weggies in your area. As for your old doc, yes, you were blessed.

[pberggren1]

There are only about 2,000 Weggies in Western Canada.

[mr.g]

I am a Group Health member. GH has a Specialty Clinic in Tacoma and has a great rheumy. I believe she is Board Certified. I think she travels to Seattle GH on Capital Hill. If you can get a referral or can afford a second opinion, where ever you go, be specific about wanting a WG specialist. I am a walking advertisement for GH because over the past five years I have been seen by fifteen different specialists, all of whom have been really good. I don't know if GH accepts referrals or not. I will be talking to my rheumy next Monday and will ask. Let me know if you are interested. Ev (mr.g)

[annekat]

Gee, maybe I should join Group Health. I'm not sure how I could, though..... I'm on Medicare. I guess a person could be on both, but I'm pretty sure I couldn't pay the GH premiums. Mr. g, have all these great specialists you've seen been at Group Health?