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Thread: Vasculitis: Northwest washington state

  1. #1
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    Default Vasculitis: Northwest washington state

    I lady I know on Facebook, that is originally from Canada, has started a vasculitis support group on facebook as well as a face to face group that meets regularly.

    Here is the link to the facebook group:

    https://www.facebook.com/groups/301051746623018/

    And for those of you not on facebook her e-mail is: [email protected]

    She said anyone can e-mail her their phone number and she will call them back.
    Phil Berggren, dx 2003

  2. #2
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    Apr 2011
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    Olympia, Washington
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    Awesome, Phil! I just visited the page and put in a request to join. It is a closed group, so I guess that means they'll contact me and make sure I really have vasculitis, or something. In any case, knowing there are all those people with vasculitis in NW Washington makes me feel less alone. Thanks so much for sharing!
    Last edited by annekat; 08-13-2013 at 10:38 AM.
    Anne, dx'ed April 2011

  3. #3
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    Anne, this is terrific for you.

    Hopefully some of them can give you information on what specialists they see in your area, that will take the Medicare and wont cost too much.
    Who knows, they may even see many Weggies.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  4. #4
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    Thanks, Michelle. Yes, I would not be too surprised if there are some doctors around here with considerable experience in treating Wegs. Maybe the VF just doesn't know about them yet. I don't think I'll be able to make the upcoming gathering for this group, but joining them on Facebook is a start!
    Anne, dx'ed April 2011

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