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Seriously, Phil?! haha. When I first heard the word Vasculitis it sounded like an STD. I know better now!!!!
Officially Diagnosed 07/31/2013
My blog:
http://nikkinicolealison.com
"It's no use going back to yesterday because I was a different person then" - Alice in Wonderland
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I am very serious Nicole.....lol
Phil Berggren, dx 2003
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Alysia that is so great that you were finally able to meet someone there with wg also. She must live nearby if she was at the same cinema. Hopefully you two will stay in touch,too bad she won't join our group. Maybe in time she will . Hope you are feeling well.
Life isn't about how you survive the storm, but how to dance in the rain !
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Originally Posted by
mishb
Were you her first "encounter" as well, or does she know of others?
Is the saddle nose only WG appropriate or can it also happen with other diseases/conditions?
thanks, my friends, for your comments
Michelle, I didnt ask her about meeting other weggies. she looked kind of helpless trying to survive.
I think that in the beginnig not everyone is searching for other weggies.
we are already "wg-veterans", so we have more "internal space" to search and meet other weggies.
sometimes in the beginning (and I rememeber myself) you prefer denial and meeting other weggies is in contrast to denial.
about saddle nose - I check in "find Zebra" and wg comes in the 5 place. but 1-4 are much more weird and rare. It is awful that ENT docs don't recognize the shape of saddle nose at one minute. as we already do.
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