Hi Chloey,welcome to our group and sorry you had to join. This disease is definatley not an easy one but things do get better. You need to get a dr. that knows what he is doing. How much prednisone are you on,they may need to increase it if you are in alot of pain. Where is your involvement at? Lungs,sinusues,kidney ??? There are several, people on here from the land of oz, The Big Kahuna, who started this forum is from there ( if he's not out traveling around the world-haven't heard from him lately-probably jet-lag !!!! ) but I'm sure they will chime in and give you some good advise. In the meantime just do what you can and take care of yourself.
Life isn't about how you survive the storm, but how to dance in the rain !
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