You sound great and like a very strong person. It is good you finally took over your treatment. I have a much smaller but similar story my hands look like I put them in boiling oil and are so painful. I was prescribed antibiotics and some very expensive hand cream. They kept getting worse but each doctor did more or less the same so I made a private appt. with a doctor who believes in me and also who discovered that I had WG and he said no cream will get rid of that you have to back on Pred, so I did event though I hate it and now they a starting top improve. It just shows with this disease you have to take control yourself and if you don't agree with the doctor get another one until you find one you like. Good for you coming back to a better life. I am sorry you had to go through so much at the hands of incompetents.
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