Hi there. Don't know if you've read my 'Weggie story' but similar to yours except I wasn't diagnosed until I was admitted to hospital, put on life support, family called in as might not make it through the night, moved to a renal unit, dialysis, blood transfusions, kidney core biopsy, plasma exchange more blood transfusions then shipped to a third hospital. Don't let medics tell you how you feel. Be adamant, forceful and question their diagnosis if you need to. The alternative can be fatal - almost was for me. That condescending Pratt who patted you on the leg could have killed you through ignorance. You go girl, well done you for taking the initiative.
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