Unidentified Pain

[drz]

Thanks for update on what happened. It sounds like a real ordeal for you so I hope recovery goes well for you and that whatever treatment you get is successful.

[vdub]

I had 3 lymphs taken out about 5 months pre-dx wegs. Doc said it was the strangest nodes he had ever seen. I doubt they were checked for granulomas.

[Rose]

That certainly is great news. Having that off your mind I am sure is going to help with a speedier recovery from the surgery. Can only get better from now on.

Rose

[annekat]

Katrina, what great news that there is no cancer, that you got the offending mass out, and that your lungs were not affected! So sorry to hear about the pain, and I hope that will subside soon. I had a rare, non-cancerous tumor in my breast once which was removed. Much easier procedure, no comparison, except that I wonder if Weggies, or future ones, are prone to other rare and weird things happening medically. I know I've read at least a couple people on here say they always get the weirdest things. In any case, best wishes to you, and I'm looking forward to the next update.

[Spud]

Hi Katrina, i do feel for you, pain is a curse. One mistake i made in the beginning was that i blamed Wegeners for everything that went wrong. Just a thought, i sincerely hope it gets sorted soon. Good luck and do take care. Brett

[mishb]

Ouch, ouch, ouch.

Gosh, I hope you are pain free soon. I'm so sorry that you had to go through so much of it, however, excellent news that it isn't a malignant mass and that they managed to get it all

Get lots of rest ......... and the bubble wrap and cotton wool, is on it's way

Very gentle hugs to you

[Debbie C]

Katrina,that is great news. Did they say that it may return again and do have to take other meds since it is another rare disease? Hope the healing is fast for you and they can get a good treatment plan under way. Let us know what happens on your next appt.

[Alysia]

Hi Katrina.
thanks God for the news. it seems that you have a good team of docs.
I must say that you are a very brave girl. I admire your ability to endure the waiting period and then the surgery and all the rest.
I hope that from now on things will only get better.
take care

[HopeinTN]

First off, I got engaged over the weekend! No date set, but we dated, broke up and dated again for 6 years, so no plans to rush it now.

I also had a great update from my docs recently. I have now stopped taking the Cytoxan for Wegener’s and will get to lower the Prednisone dose by 1 mg every month. He said he considers it in Remission since this latest incident did not involve Wegs. YIPPEE!

Also, no radiation or further treatment for the Desmoid tumor that was removed. While it wasn’t malignant, it’s treated as if it were due to aggressive growth rates, typical proximity to vital organs and the high probability of it coming back. For that, I will have a CT every 3-4 months. While this stuff is a nuisance, it could be worse and I’m still above ground.

Thanks again to everyone for all the love and prayers.

Merry Christmas to all and be safe traveling!

[Debbie C]

Congratulations on everything,Katrina.Glad you are finally off ctx. and in remission.Let us know when the wedding is,I've always wanted to come to Nashville !!
Merry Christmas and have a Happy,Healthy New Year !