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Thread: More confused everyday

  1. #1
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    Default More confused everyday

    First I was told I have Wegs, put on meds for several months, then told I do not have wegs, it's fibromyalgia, osteoarthritis and sinusitis. (Rheumy) Today I was told I do have "Vasculitis" (Pulmonary/Internist who states he loves a challenge) and have blood work set up yet again. Liver numbers were 2 & 3 times normal but now are fine??? CT show lesions and cysts but have had them for years and are unchanged. Yay for that!
    Good grief .

    I had an allergic reaction to Lyrica, itchy all over and peeling scalp & face. What fun! So for now it's Cymbalta, Hydrocodone and Clonazepam. Feel like I've been hit by a truck an just want to go to bed and when I wake up find out it was all just a dream. (Nightmare)

    Hope everyone else is doing well and Happy Flag Day!

  2. #2
    Join Date
    Apr 2011
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    I'm sorry you have had such a frustrating and confusing time of it, Wanda. If you have vasculitis, you either have Wegs or one of the other forms of vasculitis, and it doesn't sound like you are getting the right meds. It sounds like you need to be evaluated by a vasculitis specialist. Just "loving a challenge" probably isn't enough. He needs to at least consult with a specialist. We have been over and over that on here and I'm sure others will have more to say, including maybe a recommendation in your region.
    Anne, dx'ed April 2011

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