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Positive diagnosis today
Jenny has been positively diagnosed today as having WG. They have started her on Prednisolone 25MG30 x2daily.
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They just put her on pred? No other meds?
Phil Berggren, dx 2003
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They gave her a sleeping pill too. She has ear drops to help with the infection but that's all. We are very new to this so any advice/ suggestion must welcome. Thanks . I should add that there's a whole swag of tests over the next few days, blood and urine, bone scans, chest X-rays so the Pred' might just be to get a head start prior to having a full picture.
Last edited by Mikek; 06-04-2013 at 08:59 PM.
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I would ask the docs why just pred. Ask about Rituximab or Cytoxan. Pred alone will not treat Wegs.
Phil Berggren, dx 2003
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I was just put on pred too, until they did all of the tests over a four day stay in hospital.
A 24hr urine collection, hand and feet xrays, chest xrays, chest ct, lung chamber test and lots of bloods - oh and a bone density scan.
Then after all of these, they put me on MTX.
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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I'm glad to hear you got the dx so you are no longer wondering and know what you are dealing with. I assume the full treatment will start soon, knocking out the inflammation and symptoms and stopping the progress of the disease. Then, hopefully, Jenny will be on her way to remission and back to a more normal life. All of us on the forum will be waiting to hear how it goes.
Anne, dx'ed April 2011
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Thanks, Jenny and I really appreciate your support.
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MY daughter also was started on Prednisone, while other test results were coming in, to make sure she had no hidden issues that would be exacerbated by knocking out her immune system. As soon as the all-clear came, she was started on Methatrexate & Retuximab.
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Maybe it depends on the severity of your condition at the time..........ie. whether you are on your last legs, or whether you can still manage without.
For me, I know they really needed to get the inflammation under control first, and therefore pred was the big hitter for me. I was on mobic before that for the RA, but it did nothing.
I hope Jenny is in good spirits and that the complete treatment starts in the next few days.
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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Jenny has gross discomfort in the nostrils/breathing department. Is this usual for this stage of the condition? She really is very uncomfortable and naturally, being early diagnosed, depressed at the prospect of poor health. What will Pred' actually do for her ?
Last edited by Mikek; 06-05-2013 at 08:02 PM.
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