I'm so sorry you are having to walk this path. It sounds like my daughter's case is similar to your sons. My daughter had sudden onset of chronic ear and sinus infections at the age of 9. (December of 2009) She had her adenoids removed and tubes put in in March of 2010) No antibiotic would take care of the on-going infections. The ENT totally missed this was WG. She continued to deal with ear/sinus stuff until Feb of 2012. She became ill (skin rashes, joint pain and swelling) Ped. sent us to children's hospital and doctor knew right away it was something in vasculitis family. She was admitted to hospital the following Sunday (2/5/12) and official dx came that following week. Return isn't working for some reason?.?.? So we've been battling WG since Feb of 2012. Bethany is doing much better. She's not in remission (though that definition seems to be different depending on who you talk to) She is stable. She's not in any pain. She's on a boat load of meds but she's used to it. Like someone else said, I'm glad you found this board. Everyone here is so great and helpful.
Praising Him,
Kim
Wife to Brooks (20 years)
Mommy to: Bekah (16), Sam (15), Bethany (14 -- child with WG. dx Feb 2012), Mark (9) and Sarah Ruth (born Feb 2012)
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