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Thread: Need your help!

  1. #11
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    Congratulations Marta

    Rif

  2. #12
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    Love you guys!!!

    Life is a little nutty right now, but sure is fun.

    I just had some banners made up and we assisted the new sponsor (Mobil One) at a grand opening of a store in Edmonton. There was a live radio feed, but the DJ was young and spacey and looked right through you when you spoke, so we didn't get much out of that one, other than making some more connections. We met a race car driver there that had brought the Edmonton Police Car Indy Car for display, and he has Crohns, and we started exchanging stories about living with an AI disease (my sister Hana was with me and she has Psoriatic Arthritis) and our stories are so similar and he got the picture. It was a cool moment to see the 'AHA!' in someone's eyes. He said he'd get our logo put on his dragster - the ones with the jet engine on the back. Weeeeeee!!!! He races his car in Vegas, so look for a yellow car with a black and red hand on it if you're there.

    I've also been working with our hospital on the early plans of the Autoimmune Disease Centre of Excellence. It's so cool. We'll have a week long (or longer if necessary) session for each disease (or disease group)... so like Vasculitis, MS, Lupus, Diabetis, Arthritis, and on and on... we will have specialists, financial advisers, psychologosits, physiotherapists, dieticians, and also will have a camp in the mountains where kids with autoimmune can share their battles and their strengths and network creating support groups for a better life. I'm working on getting some supplementary things as well, like yoga retreats, Qui Gong sessions daily with China, Naturopathy, Acupuncture, Aboriginal Healing... I want people to come here and heal from whatever angle they need in their particular case. So that's where the money is going to go - creating those partnerships to make this dream a reality, and in the process we can change the way that autoimmune is perceived by the public, medicine, and government. It's so cool, and I'm so excited.

    But first, gotta get a float going for our Canada Day Parade. We're going in our PJ's. I just bought some doweling, hooks and wheels to assemble into what we hold the banner up with, but the hospital offered us some of their IV hangers, which is awesome and what I imagined in the first place, but didn't want to ask (too shy - ha ha). Can you see us in our PJ's pushing the banner with the IV hangers along the parade with all 140 autoimmune disease names on it. We'll be blowing bubbles and giving out freezies... and I still don't know who will come along. I'll put the word out on Facebook right away... ha ha ha.

    That was my insane little update.

    I thank you again for all the help with getting our thing in front of the judges. You rock, and again...

    Love you ALL!

  3. #13
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    You're insane Marta, but we love you and everything you do for the all of us! Keep it up sis!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  4. #14
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    Marta,

    You're awesomelyamazing!!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #15
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    I think insane is the closest description, but it makes it that much more fun.

    I'm just the idea girl, it's all of you, and my super cool town-folk in Jasper who are the doers. Apparently Pajamas can get enough attention... imagine when all of North America is wearing them, now that'll be cool. Everyone will know the definition of autoimmune disease.... and this forum is where the idea germinated, now that is super cool.

  6. #16
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    Quote Originally Posted by marylz View Post
    This is FANTASTIC!!!
    And well deserved!

  7. #17
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    Here's some photos of our float - you will laugh when I tell you what my plans are for next year, so I wont until I manage to pull it off. It'll go with the theme of making the seemingly impossible, possible - just like finding a cure for ALL autoimmune diseases....

    OK - so I couldn't post my pictures, so I ended up writing a post on my blog with the photos for you to see. Find The Common Thread | the first little ripple towards finding a common thread to autoimmunity

    Phee-ooff - now I can chill for a few days.

    Hugs to you all.

  8. #18
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    Wow, Marta. What an awesome job on that blog! I don't remember if I've looked at it before, I must have, but it is sure bookmarked now! I think everyone on here, especially the newcomers to Wegs, but really everyone, should save it and look at it often. There is some excellent info on there about autoimmune diseases in general, what autoimmunity is, links to resources, etc. I was amazed at the length of the list of diseases! More power to you, ever onward!
    Anne, dx'ed April 2011

  9. #19
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    WOW! i knew you could do it. We did push it a little on my end of the world so I know you had people all over pushing for it! This is really incredible and could not be in more capable hands. What a big project...can I ask a side note about the book?
    Experience is the only way to survive. <3 Rini Orange

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