Anyone have answers about blood work?

[Wanda]

Bob,
I am not taking any prednisone. I dropped 5mg every 7 days and then 2mg for a week to zero. I also quit taking the immuran. Where I live there are no wegs specialists but my new primary care dr said he has several wegs patients (he's a Pulmonary and an Internist) he hadn't seen my blood work. I've only seen him once. He is the one who ordered the ultrasound and x-ray based on my ct's. I just don't know enough about the blood work and what it means. I will "hurry-up and wait" until results are back from chest x-ray and ultrasound and figure out what to do. Thanks for the advice.

[Psyborg]

I understand that completely. Perhaps he could consult with the Wegs specialists if needed. It sounds like based on what you said that your care appears to be improving with the new doc so that is good. It is unusual to go completely off prednisone that quickly, but if you were able to tolerate the reduction I won't question that

You definitely should be on some sort of maintenance drug if there is any activity for sure.