Hi, my husband was diagnosed with WG about 3 years ago. His was lucky, I guess you would call it lucky, because changes in his vision sent us running to the Opthamologist and then the neuro-opthamologist who then made the diagnosis after 5 very scary days in the hospital. My husband had lost all vision in one eye and most in the second before he was admitted and started on Iso-medrol infusions. His vision quickly recovered and then he continued on high doses of prednesone and cyclophosphamide and finally Immuran. He was almost off all drugs this past year when it recurred. Again his vision has been affected and we are starting all over again. This time with infusions of Rituxan. He has had two 1000mg infusions within 2 weeks time. No change in the vision yet??!!. Has anyone else had WG in the brain affecting the Optic nerve?? Have they had Rituxan?? Does it work?? What next?? So many questions!!
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