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Thread: My third anniversary of my Weg diagnosis is today.

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    Smile My third anniversary of my Weg diagnosis is today.

    Last year close to my second anniversary of diagnosis I posted about my diagnostic experience and improvement. Now one year year later things are much the same. Right now I am feeling good and back in a drug induced remission again. I had two infections this winter which cause the Wegs to flare two times during the holidays from before Thanksgiving through a couple weeks after New Years but since then have felt pretty good again.

    I see a lot of doctors frequently at seven different locations to monitor my health and they say I am doing better than last year. I feel very fortunate and am very happy about the degree of recovery I had from my worst times, but i am still hoping for further improvement in the next year.

    Some times when I am feeling pretty good I get delusions of adequacy and try to do some task that used to be very easy for me and then end up having to spend a day in bed resting up again. I am getting much better though at rationing my "spoons" and taking naps PRN before I over do things and crash. I am now much better at accepting my new "normal" and find it mostly enjoyable despite the various limitations from the Weg damage and need to have a medical appointment or two almost every week. This usually means a day trip out of town (over 9000 miles last year) But I know that unless I am diligent in trying to maintain what health I have left, I will have little joy in Muddville.

    Have a good day unless you have made other plans!
    Last edited by drz; 04-10-2013 at 12:49 AM.

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    Hi drz
    strange to say "happy anniversary", but this is it
    it seems that things are getting better from year to year
    it is good and good to hear about it.
    it is a kind of "relationship" with the weg.
    I call it "my wegener", sometimes with anger, sometimes with kind of "intimacy", like we are 2, me and my weg.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    Quote Originally Posted by drz View Post
    I get delusions of adequacy...Have a good day unless you have made other plans!
    First of all, congrats drz...another year down! Yea! And feeling better too, well, same is better!! LOL! Annnnd, you ARE sooooooo funny! Methinks your expression of self is improving vastly...those lines are soooooo mean, ironic, and TRUE!!! Love it! Made me laugh...I like laughing! Good therapy, y'know! The best as always to you!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


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    Hi drz,

    Happy anniversary, I think. Given some of the options, it probably beats not having an anniversary. ;-)

    Delusions of adequacy -- I love it. Describes my approach to strenuous work also. At least I'm retired, so I'm having a lesser sense of urgency about yard work. If it doesn't get done today, it'll still be there tomorrow. Hey, the maņana mentality is useful after all!!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Congrats, drz, on being able to say you are doing better on your third anniversary than you were on your second. AND, we have pretty much a shared anniversary, as my dx was right around this time 2 years ago... could even be the same date, but I'd have to find an old calendar to know for sure. I, too, can say I'm doing better than a year ago and also have experienced the "delusions of adequacy", along with some actual adequacy!
    Anne, dx'ed April 2011

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    Quote Originally Posted by annekat View Post
    Congrats, drz, on being able to say you are doing better on your third anniversary than you were on your second. AND, we have pretty much a shared anniversary, as my dx was right around this time 2 years ago... could even be the same date, but I'd have to find an old calendar to know for sure. I, too, can say I'm doing better than a year ago and also have experienced the "delusions of adequacy", along with some actual adequacy!
    Today is the same date, two years ago, that I started my journey with WG medication.
    I was, however, diagnosed in Aug 2010 but had to wait on specialist appointments and biopsy before any action was taken.........we don't do anything in a hurry over here

    Well done drz and I'm glad things are getting better each year.

    .............How about you make your next anniversary, a med free remission
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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    "happy" anniversary DRZ I hope the coming year is a healthy one for you
    ~ Bob

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    Quote Originally Posted by Pete View Post
    Delusions of adequacy -- I love it.
    Me too. Brilliant!

    ... Hey, the maņana mentality is useful after all!!!
    Also very true, and funny!


    Congratulations to you, drz!
    And many happy returns!
    Living with WG/GPA since june 2010...

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    Yippee! Here's to many more years of better health!
    "Never go to a doctor whose office plants have died." - Erma Bombeck

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    Great news, I wishing you all the best every day, all day long! I also am coming up on 3yrs of my major flare and lung surgery. I know what a scary eposode you had when you first got sick and you have came a long way baby! A big congrats is in order!
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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