Healthy Lifestyle For Wegeners Patients to Prevent Relapses

[rebekah]

I don't think I could add anything else to what's already been said, but I do want to say congrats on getting into grad school!! I know how tough that can be - it's a major accomplishment! I really hope you are able to attend. Please keep me posted on what you hear from the doctors... I'm curious as to their opinion. I'm deciding whether I should continue on with my med school journey (pending I get accepted) or put it off for a year to two till I can get Weg's under control and get off this crazy roller coaster ride for a little while. Best of luck to you!

[MarN]

Dear Rebekah:

Hello and thank you for your greetings.

Yes it was really a tough process!

I had a consultation with one of my doctors. He said the same as our friends posted for me in this forum.

He said that I am a sensitive person and expect too much of myself all the time. So, I tend to put stress and pressure on myself unconsciously. Also the graduate program is competitive and strict. So, it might have negative impacts on my health condition.
He said that it is up to me to make the final decision, but I have to make sure that I have the ability to control myself not to fall into such a dangerous trap!

So, one of the important things to control the illness is to be able to manage stress in hard times.

But it is not clear to me whether biochemical effects of toxic environment and several taken medicines, radiation and bad habits have the same side effects of stress on patients or not!

I have managed an ideal healthy lifestyle for the last 5 years and I guess that was really helpful to control the condition.(The only years that relapse did not happen again!)

My doctor was astonished by the results of my positive mental state and activities. I have regular exercises per week and do yoga every day.I have worked as an artist in my studio and enjoyed it very much. I also have a very strict healthy regimen.

But things would be different if I attend a graduate engineering program, abroad. That is why I am so concerned about my health condition,then!

Wish you health and success in your life.

With regards,

[annekat]

The stress thing is really big for us Weggies! I'm not in school or anything but am a 60-year-old woman trying to get by in a home-based business. I really do let myself get too stressed sometimes! Yoga, meditation, exercise, and better diet are all things that could help. Also training oneself to avoid stressful situations that are unnecessary to one's livelihood, education, or happiness! Sometimes this means not talking at length to certain people, and not going into unnecessary detail about things! When I meditated years ago, and really worked at it, I became much better at staying on an even keel in everyday situations.

[MarN]

Thank you for the advice,dear Anne.

Yes, I have to learn to avoid stressful situations.

Wish you the best.

[Alysia]

Hi MarN.
welcome to the forum. it seems that you have a lot to teach us about living with WG.
I wonder if all "stress" conditions are the same. there are some more "toxic" then others. it is an issue. maybe for another thread...
I will be glad to read more about things that you find helping to control WG.
thanks.

[MarN]

Dear Alysia:

Hi.

Thank you for your writing.

Yes, I always suspect toxic environment, medication, medical methods of immunization, radiation, stress and also bad habits as some factors, leading to cancer and autoimmune

diseases.

I have recently learned that there are some medical tests that you can find out about the amount of minerals and vitamins in your body and see how many of these minerals have caused toxicity and how many are under the standard level. Low level of some of these minerals can cause cancer like Iodine or Bromine. Also, you can get rid of the toxicity in your body. You should ask your doctor to help you find out about these things.

Organic foods and drinks are supposed to be less toxic and can be a good choice for patients like us. So, healthy regimen is really important to avoid disorders.

Besides, regular exercise and YOGA can help patients improve their health condition and relieve tension. Ayurvedic Medicine can also be helpful.


In conclusion, I believe that, as long as we do not know which factors are really causing these disorders, we have to avoid those we suspect.

But stress management is really important in controlling these diseases, because stress can take over our minds and bodies and have harmful effects on us.

Wish you health and success in your life.

With regards,

[Jaha]

Welcome to the forum! I think that you can really help us learn more about all these things. We will all be grateful for the knowledge.

[annekat]

I think stress is stress, whatever the cause. Some people may have already developed ways of dealing with it, avoiding it, not letting themselves get too caught up in it, before getting WG or having it otherwise impact their health. Others of us may need to retrain ourselves to avoid stress, to get our priorities straight about what is really worth stressing over, etc. For me, stress causes an almost immediate increase in my symptoms. Of course there will always be stress in life. But we may need to re-evaluate what potentially stressful situations we may not need to get involved in. Or how to just roll with things that are beyond our control. These are the things I've been finding out lately.

[MarN]

Dear Jaha:

Hello and thank you for your writing.

I am not a physician and have just searched the web to see how I can help myself deal with the illness.
I need to learn a lot from all of you guys, your experience and knowledge to help myself.

Wish you the best.

[Barbara N]

Welcome, I can't add much more than has already been said here. Congratulations on getting into Grad. school. Stress seems to be a common word on this forum and something that is hard to deal with. I have changed my whole way of looking at life but it took a long time. I have had WG for a long time but was only diagnosed about 5 years ago. They didn't think of it because I had already been diagnosed with another rare disease that destroys your kidneys and heart. Having a hobby or something that you love to do really helps and YOGA in every way helps. Part of my self designed therapy is a type of yoga but done on horseback. Our saying is " relax, breathe deep and look through the ears" the look through the ears part just means to look up at the world around you and watch where you are going. If it is what you REALLY want, you can do it even if it is on a part time schedule. Suerte, Barbara