User Tag List

Likes Likes:  0
Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 33

Thread: Wegener's specialist in Florida?

  1. #21
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for sharing that info, Debra. I'll be sure to check out doctors there for experience. And I agree, better than making the big move to Cleveland.
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  2. #22
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,371
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Just saw a note on Facebook that Dr Chang Lin, a fellow at Cleveland Clinic, will be setting up shop at University of South Florida in August or September. Hope he's a good one.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #23
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks, Pete! I got that email this morning and posted it there since I've been talking with a few people in that group to try to find someone here... just logged on here to share it with this group - I see you beat me to it. I didn't get any contact info from them, though I did a search and did find he is a rheumatologist. So happy there's finally one coming here. It's great news for all the Floridians.
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  4. #24
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    I hope he turns out to be great! Now if one would just set up shop around here....
    Anne, dx'ed April 2011

  5. #25
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    I'll work my magic and see what I can do, Anne... maybe persuade a doctor at the symposium to move near you.
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  6. #26
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks, Rebekah.... it may just be that there isn't enough population concentration here, overall, compared to anywhere on the east coast. But with more and more people being dx'ed, maybe...... not that we want more people dx'ed, but it seems to be happening, and could lead to better and more available treatment in the long run.
    Anne, dx'ed April 2011

  7. #27
    Join Date
    Apr 2011
    Posts
    344
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by rebekah View Post
    I'm thinking about looking for a new doctor. Don't get me wrong, I like mine, I just feel she's not the best one for me. She isn't a Wegener's/vasculitis specialist, but she does consult with one at the Mayo Clinic. If it weren't for her I probably wouldn't be here today, so I am very thankful. However, I usually feel rushed as she always has a lot of patients and unless I can get an appointment at 8:00am I'm usually waiting a while to see her. I just think that, especially after my recent flare landed me in the hospital, I really need to see a specialist. Does anyone know of any good specialists in Florida? I see that Dr. Lee with the Mayo Clinic in Jacksonville is listed on the VF website... anyone heard good things about him? It's tough to find doctors knowledgeable in vasculitis in Florida, we definitely need more here.
    Hopefully I'll be one soon...
    I'm from Miami fl. I heard there is a Cleveland clinic in Weston. My daughter sees Dr. Chacon but I am also one to take her to a vasculities specialist. I

  8. #28
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    I’ve looked into it and there unfortunately isn’t an experienced doctor for WG at the CC in Weston (at least not when I last checked). Dr. Lee is at Mayo in Jacksonville, and I'm sure he’s good since he’s on the VF website. I’m considering going to see him. As soon as I hear something about Dr. Lin and USF (ie, his experience and when he's accepting patients) I’ll be sure to update you.
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  9. #29
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,970
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    I maybe spending the winter in Fl. so let me know if you do find a good one ! Good Luck
    Where is the USF ?
    Life isn't about how you survive the storm, but how to dance in the rain !

  10. #30
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    USF is in Tampa
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

Page 3 of 4 FirstFirst 1234 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •