User Tag List

Likes Likes:  9
Page 3 of 5 FirstFirst 12345 LastLast
Results 21 to 30 of 43

Thread: Bronchial Stenosis

  1. #21
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    It is probably in the larynx area where it sounds rattly.
    Phil Berggren, dx 2003

  2. Likes Alysia liked this post
  3. #22
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,884
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by pberggren1 View Post
    It is probably in the larynx area where it sounds rattly.
    That sounds about right, since that's right before it comes up, and I guess the vibration of the larynx would contribute to the rattly sound.
    Anne, dx'ed April 2011

  4. #23
    Join Date
    Oct 2010
    Location
    Ohio
    Posts
    815
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    I had my 1st bronchoscopy in Nov, with just valium. It was done by a pulmyonogist, I went to an ENT and he referred me on. The report was that I didn't have stenosis, but he said I had like pot holes filled with mucous. He called it chronic bronchitis. I don't really know if everyone has pot holes,but I guess I did. I'm like Phil I usually have to use my machine to cough it up.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  5. #24
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,884
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Jaha View Post
    I had my 1st bronchoscopy in Nov, with just valium. It was done by a pulmyonogist, I went to an ENT and he referred me on. The report was that I didn't have stenosis, but he said I had like pot holes filled with mucous. He called it chronic bronchitis. I don't really know if everyone has pot holes,but I guess I did. I'm like Phil I usually have to use my machine to cough it up.
    Weird... pot holes! I wonder if I have them. I don't probably need a nebulizer, but I do find it helpful to inhale steam from a bowl of hot water, carefully, with mint or other herbs added.
    Anne, dx'ed April 2011

  6. #25
    Join Date
    Oct 2013
    Posts
    22
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Hope for bronchial stenosis?

    My husband had a treatment done for bronchial stenosis, where they ballooned it out and injected steroids, (broncotophy??) He felt better for only a few weeks. He is not well now and we are wondering what kind of treatment/relief others have had. I was trying to reply to Phil but don't know if these comments will be attached to his.
    Are these treatments just temporary fixes, or do they help in the long run?

    We are new to this forum, and are really hoping to find some info as we don't know anyone else with WG.

    He is presently on 50 mg pred and finished 1 treatment of RTX. He is also doing Cytoxan infusions. His 12 year w/ WG.

  7. #26
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,884
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    If you use the "reply with quote" function from the bottom of Phil's post, your comments will be attached to his. He knows a whole lot about this subject. I'm sure he'll be onto it. I don't have stenosis myself.
    Anne, dx'ed April 2011

  8. #27
    Join Date
    Oct 2013
    Posts
    22
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thank you Anne. I keep logging on here, so desperate to hear from anyone who knows anything.
    Although we've been at this for 12 years, this is one of the worst he's been. Very labored breathing,
    and we are not sure if another broncoscopy will help.

  9. #28
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,884
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by COWG View Post
    Thank you Anne. I keep logging on here, so desperate to hear from anyone who knows anything.
    Although we've been at this for 12 years, this is one of the worst he's been. Very labored breathing,
    and we are not sure if another broncoscopy will help.
    You can also do searches on stenosis, or I think it may even have its own topic listing on the forum.... check the main page and see. You can also send private messages to specific people, asking questions or whatever.
    Anne, dx'ed April 2011

  10. #29
    Join Date
    Jul 2010
    Location
    see map location
    Posts
    4,117
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by COWG View Post
    My husband had a treatment done for bronchial stenosis, where they ballooned it out and injected steroids, (broncotophy??) He felt better for only a few weeks. He is not well now and we are wondering what kind of treatment/relief others have had. I was trying to reply to Phil but don't know if these comments will be attached to his.
    Are these treatments just temporary fixes, or do they help in the long run?

    We are new to this forum, and are really hoping to find some info as we don't know anyone else with WG.

    He is presently on 50 mg pred and finished 1 treatment of RTX. He is also doing Cytoxan infusions. His 12 year w/ WG.
    If the stenosis develops early as part of the initial symptoms of Wegs any surgical fix might be long term as the treatment gets the Wegs under control and the stenosis does not return. Many of our initial Weg symptoms like kidney damage, lung damage, hearing loss, skin eruptions, etc seem dormant for a long term once treatment of Wegs is successful in attaining a drug induced remission. However, many symptoms like sinus problems and others might persist as residual symptoms of Wegs and flare up again or even worsen over time. Only time will tell which category his stenosis falls into but lets hope for a long term fix and a quick remission of all symptoms.
    Knowledge is power! Wisdom is using it to make good decisions!

  11. #30
    Join Date
    Jan 2012
    Posts
    7
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    My Doc wants to put a stent in to keep my Bronc Stenosis open...every Doctor has told me not to do this. Has anyone got this done, mine would be in the left bronchia over the heart area.

Page 3 of 5 FirstFirst 12345 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •