Hi,
In the few days I'm here I learned so much, thank you For the information and for the emotional support

I think of the proportions: some of you are going to a clinic with 700 wegies ! Wow ! Even 35 is a lot. Most of the doctors I met never saw any wegee before. My WG doc saw some, I didn’t dare to ask him how many…
I want to ask about joints – red and aching. When it is happening, like this week, my doc told me to take more pred for a couple of days. There are some options: 60-40-30-20-10-5 for 5 days, or 20 for 3 or 5 days then 10 and then back to my usual 5 mg. I would like to ask if this is the right way ? other ways ? maybe something is missing in my treatment ? How can you tell if a treatment is enough ? If it fits' is that’s mean having no symptoms ?
In addition to pred I take MTX 2.5 mg a day, six days a week.
I don’t like to take too much pred, although it bring grate relief, because of the 'cocker spaniel' face it cause… and not to mention hair loss because of MTX… important issues for girls…
Alysia