colon involvement ?

[Jaha]

Alysia,

When I was on MTX I took an injection once a week and also took folic acid. My rheumy warned me that it was hard on the stomach so we decided to go with the injections.
Jana

[mishb]

Hi jane,
Thanks. a lot of health to your daughter.

ABOUT THE MTX : Does anyone here taking it every day, like I do (6/7 week) ? Is it a problem to take it like that ?

Alysia,
I take MTX one day a week at a higher dose (20mg)

Google says once a week or alternating days with several days or weeks with no MTX in between.
I was also told that you can take folic acid every day but not on the day of taking MTX

I guess some doctors/Countries, have different ideas

[Alysia]

Hi Michelle,
Thanks. I wonder now if I am getting the right treatment after what I read here. this is plus the fact that the docs here have single cases of WG and therefore are not as experienced as yours, in Australia, USA and Canada. I even started thinking, maybe there is good WG doc over the ocean who gives consultation by Skype.
Phil,do you know such a doc ?

[annekat]

Your docs could try consulting with any of the docs listed as specialists on the Vasculitis Foundation website. This would include docs at the Cleveland Clinic, the one center I see recommended most often on here, though there are of course other good ones, too. I think consulting by Skype would be cool, but if they can't do that, they can do it by email, or maybe phone, etc. I don't know if they have limitations on countries, but I think some of the ones listed are in England, at least.... haven't looked at that page in a long time since I'm not doing anything with the information right now.....

[HopeinTN]

My sister has Chron's and she takes Methotrexate and prednisone. I hope you are doing better!

[debra]

Alysia, merry Christmas... Alysia, you have been an incredible friend, thank you... I love you, you're my sister, my mother, my special friend.... God bless you Alysia, and bring you more and more peace everyday..... All my love..... Deb. XoxoXOXO. Phil, I look forward to the day I get to thank you in person.......