hello,
I'm new here, but not with WG….
English is not my language, I read well but write terrible, sorry for all the mistakes...
I am 45 years old and I live in small city in the periphery of small country. I never met anyone with WG… A kind of loneliness… and here you are, so experienced and generous…
I have WG since 2008, and maybe before. Starting with acute pneumonia, 5 kinds of antibiotics with no effect, ESR 100, lungs all white in XRay, and then pred save my life. 60 mg. first diagnosis was BOOP.
Afterwards my nose start bleeding, then ears problems, bronchi, cough, joint red and aching and colon involvement.
Now I am on pred 5 mg a day and MTX 2.5 a day. 6 days a week.
I have good rheumatologist and he says my illness is active but on low level. Thank God there isn’t kidney involvement (yet??)
I want to ask if someone here got it in colon ? and if so, what med help with that ?
I have diarrhea which become worse if I eat a lot of things, I cant eat a lot of foods, including fruit and vegetables.
I want to ask so many questions, but one by one…
Thank you for being here
Alysia
Bookmarks