Originally Posted by
annekat
Yeah, I actually enjoy telling people that chemo and steroids are the only meds that work, and that I would die without them. Good shock value.... they can use a little shock once in awhile. And I'm so sure that I am right and they are wrong, when they start telling me I should just quit wheat and dairy or some such nonsense, that I enjoy the feeling of assertiveness in telling them, in a nice way, that they are wrong.We bristle at the expression, "well, at least it's not cancer....", because it shows a lot of ignorance. But I feel lucky when I look at some people I know, friends and neighbors, who have gone through cancer, died from it, or are currently dealing with a cancer diagnosis and the uncertainty of that situation. I am way better off than they are at this point. But I know that could change and there are people with WG/GPA who are in grave danger and suffering a lot more than I am. People have little understanding of the capriciousness of this disease.... heck, even we who have it may not completely get that.
Bookmarks