Info on Johns Hopkins Wegs Specialist

**ArlaMo** · 01-17-2013, 04:47 PM

I didn't need a referral for Cleveland Clinic but I did need one to see Dr. Koening at the U of U. I would call and see what their procedure is.

**Sangye** · 01-18-2013, 05:33 AM

Dr Seo has been treating me for over 4 years at JHU. Here's a link to their clinic which tells you what you need to make an appt, etc... You do need to be referred by one of your doctors. A PCP is fine.
http://www.hopkinsvasculitis.org/about/appointments/

**Sangye** · 01-18-2013, 05:37 AM

Unless you have something urgent, it usually takes about 6 weeks to get in to JHU. Once they receive all your records they take about a week to review them (they do this in great detail). After that, you can make an appt.

The receptionist is named Kim. She's very moody and loses her temper on a regular basis. But I've been patient and kind with her and she treats me well. We sit and talk whenever I'm there. I've taught her a lot about what we Weggies go through. She had no idea at all. There is a caring person in there under all the grumble. LOL And if she tells you she's still waiting on something, etc... it's true. She is good at getting things done but much is out of her control.

**HopeinTN** · 01-22-2013, 06:12 AM

Thanks. Yes, I have talked with Kim. I have my records ready to forward to her, but Vandy left out the scans. I need to get my CT'S and send them on. Hopefully I'll get this all taken care of and out the door this week. It's so much work to get it all together. It wears me out.

Happy Monday all!

**KathyB** · 01-22-2013, 10:51 AM

Originally Posted by Sangye

The receptionist is named Kim. She's very moody and loses her temper on a regular basis. But I've been patient and kind with her and she treats me well. We sit and talk whenever I'm there.

It's wonderful to experience treating someone with kindness and watching them respond in a like fashion, especially when they are grumpy or negative! It's the power of a positive attitude and respect for others! Great job, Sangye!

KB

**Sangye** · 01-31-2013, 12:20 PM

Thanks Kathy. It's a work in progress. LOL

**HopeinTN** · 02-06-2013, 05:10 AM

Sangye- I sent my records via fax to Kimberly a week ago and I haven't heard anything nor has she returned my voicemails. Is this typical? I didn't hear back from her but I went ahead and mailed the CD of images.

Take care!

**Sangye** · 02-06-2013, 05:18 AM

You won't hear anything back until they receive all your records. After you send everything, give her 1 to 1.5 weeks before you confirm that it all arrived.