Not even sure what my Alive day is for Wegs. Sometime around April 27 to May 3 of 2003 I think. I was so out of it from the pain meds that I don't remember much those days.
I do know that my Alive day for M. Abscessus is August 18 of 2010. That is the day the susceptibility results came back.
Phil Berggren, dx 2003
Since those on here are computer literate for the most part, how about a virtual community, such as 2nd Life or such. There one can be a member for free, participate in the entire community yet have our own little island or such...to be a part of...it's really kind of neat and scary at the same time if one has never done a virtual community before. Just a thought.
Knowing how to think empowers you far beyond those who only know what to think. -NdT
They are simply virtual games, if you will, that allow the user to create and communicate thru an avatar. The communities themselves can be/are managed by other people who 'lease' the server...we 'rent' from them. But one does not have to pay to be 'in world', just if one uses the 'land' and other things...you'll have to see it. Mostly, it's a 'visual' that allows one to 'see' who they are communicating with also. Otherwise, they are just 'blogs' like this in which people can create, interact, and learn...they are interesting at best, but they do allow that visual that 'we' lack here. It's also quite easy to leave messages, create WG ads, and so on...a virtual economy if you will, but you don't have to pay if you don't like, just go in and participate. I doubt if it would go over very well with people on here, but it's easy and fun too. Go to Secondlife.com to get an idea...
Last edited by Dirty Don; 01-08-2013 at 08:04 AM.
Knowing how to think empowers you far beyond those who only know what to think. -NdT
"Celebrating" four years of knowing I have GPA/Wegener's today. I'm grateful to all of you who share your experiences and lift each other up. I hope that researchers soon discover what causes our dumb disease so they can find a cure.
Good luck and better health to all!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Happy Alive Day, Pete !
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Bookmarks