Very positive experience with Dr. Koening at U of U Vasculitis Center.

[ArlaMo]

Had my first appointment with Dr. Koening yesterday - he confirmed that I'm flaring but I was very pleased with my time with him. He was very respectful of the knowledge that I have gained through this forum and all the other research and reading I've done, was very in depth in answering all my questions and I'm happy with the treatment plan he has laid out for me. Two thumbs way up for Dr. Koening!

I was also seen at the Moran Eye Clinic, which is a great facility as well. I'll need to see someone closer to home for follow-up care, but they were great. They called and talked to Dr. Koening while I was there and consulted on treatment and both parties agreed that a new round of rtx infusions ASAP is the best course for me.

[annekat]

This is great to hear! I am in the Puget Sound area. It is within the realm of possibility that I could make a trip to Salt Lake City someday.

[pberggren1]

Ya for Dr. K!!!!

[Palmyra]

We will all hope RTX is available to you soon, and brings you speedy relief. Be sure to contact others on site before your first infusion, so as to be prepared. Good luck!!!

[ArlaMo]

Had my first round of rtx (I had two infusions in April 2011) last Friday. No problems, just very tired afterwards. Next one is tomorrow, then the 21st and 28th. Crazy holiday season, but I'm glad to get them all in before the end of the year.

[Palmyra]

Hi AriaMo. I really hope this round of infusions gives you some speedy relief!

Question regarding Dr Koening....is he possibly John's Hopkins trained, dark hair/skin and 40'ish?

[ArlaMo]

He has dark hair, but his skin isn't dark. He said he trained under Dr. Langford.

[Palmyra]

OK, thanks. I am just getting old, and have seen or heard lectures by too many docs. My local VF foundation had a young doc speak some years ago under my description, and he was great. But he trained at John's Hopkins, moved to the Dallas area, then seemingly disappeared. I can't remember this gentleman's name. (The local VF group has fragmented, and is no longer active).

I know I have seen Koening's name in with the Big boys and girls, and on several publication headers, so you are definitely hanging out with the right crowd! I hope each day post RTX finds you feeling stronger AriaMo. It seems to work that way for my daughter.

Best wishes for a Happy Holiday season!
Jane

[ArlaMo]

More kudos for Dr. K! Saw him again on Monday for a follow-up appointment. He spent a solid 1/2 hour with me, answered all my questions, went over my visit to the ophthalmologist in Portland, meds, everything. He even did some research on how my Graves' Disease meds might be interacting with all the Wegs stuff and called me twice yesterday to discuss what he had found.

[Palmyra]

Better than good news Aria Mo!! A concerned involved Doc, that knows what he is talking about....its like a dream date w/ Mr Right!