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Thread: tests and diagnosis

  1. #21
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    The scopes aren't so bad really. I close my eyes while they're doing it now haha!

    My husband at the time cringing in the corner did not help, mind! lol. We weren't prepared the first time, and were so shocked!

  2. #22
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    Ah, I'll disagree with Gwen at bit here! I have them every three months (now going to four) due to SS (subglottal stenosis -- it only reached the first two rings of my trachea). The last time was horrible -- I can laugh about it now, for sure, but even my doc is amazed how much I fight him on it. Just feels like you are choking/being choked. He scopes me all the way down to the collar bone -- you can see the light coming through my throat, but it's what we Weggies with SS/TS have to do. Freaky, as you know I also had the saddling and I am sure Dr. Jayne told you that those two conditions often run together and don't always track progression of the disease for reasons that are still unclear to researchers. I luckily only have had one repair so far, and my breathing is nothing like it was before. I had gotten so narrow that I literally couldn't clear my throat, and I was constantly coughing to try to do so. Hope that's not the case with you, but at least in my case the surgery was very easy and the recovery extremely smooth. No pain at all versus having the saddle repaired.

  3. #23
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    According to my ENT I have smaller than normal nasal passages so even with the numbing stuff the scope is painful. I've only had to have it done 2 or 3 times.

  4. #24
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    My ent specialist has suggested scoping the lower airway passages but he told me it would be an uncomfortable procedure, so I think I'll postpone it a bit, as I am a little chicken to go ahead with it.

  5. #25
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    ENT's seem to love, and have, their toys...gotta love being scoped and having it shown to you, live of course, on 3 color TVs...just in case you don't see it well on the first one! I hate it, I fight it, but my ENT is the only doc who goes down there...sheesh...and she's helped my ravaged sinuses a lot...well, at least she told me she can't do anymore and I am what I am now! LOL! Nice, a frog forever...no princesses...sighs...hehe
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  6. #26
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    Yeah, my ENT has whipped out a scope a couple of times to look at my larynx, with no warning! He seems to like the element of surprise! No one has gone further down than that, though I sometimes wonder if maybe they should, which I imagine would be even more uncomfortable. I've never gotten to see anything on TV, though.

    Quote Originally Posted by Dirty Don View Post
    ENT's seem to love, and have, their toys...gotta love being scoped and having it shown to you, live of course, on 3 color TVs...just in case you don't see it well on the first one! I hate it, I fight it, but my ENT is the only doc who goes down there...sheesh...and she's helped my ravaged sinuses a lot...well, at least she told me she can't do anymore and I am what I am now! LOL! Nice, a frog forever...no princesses...sighs...hehe
    Anne, dx'ed April 2011

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