User Tag List

Likes Likes:  0
Page 1 of 3 123 LastLast
Results 1 to 10 of 25

Thread: Article from TheJournalofMusculoskeletalMedicine Continued Promise for Rituximab...

  1. #1
    Join Date
    Apr 2010
    Location
    Dallas, TX
    Posts
    409
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Article from TheJournalofMusculoskeletalMedicine Continued Promise for Rituximab...


  2. #2
    Join Date
    Apr 2010
    Location
    Dallas, TX
    Posts
    409
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Home - PubMed - NCBI


    More information on long term studies using RTX for treatment and/or maintenance of autoimmune disease. This time 9.5 yrs of use in rheumatoid arthritis. (Much larger patient pool to derive information, and longer history of use). ~JT

  3. #3
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,969
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    That article sounds promising.I would certainly rather have 1 infusion of rtx then go thru months of whatever !!
    Life isn't about how you survive the storm, but how to dance in the rain !

  4. #4
    Join Date
    Jul 2010
    Location
    Blacklick, Oh
    Posts
    1,399
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    RTX is a great thing, I just wish it wasn't so blasted expensive. My insurance picked up most of the cost and my out of pocket was still about $5000
    ~ Bob

  5. #5
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,969
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    HOLY CRAP !!!! What kind of insurance do you have ? When I was on Medicaid they paid the whole bill. I now have Anthem Blue Cross/Shield so I don't know what they would charge. But that is crazy
    Life isn't about how you survive the storm, but how to dance in the rain !

  6. #6
    Join Date
    Nov 2010
    Location
    ~46N1165W
    Posts
    1,914
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    $5k does seem a little extreme. Makes my mtx seem down right reasonable.....
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  7. #7
    Join Date
    Jul 2010
    Location
    Blacklick, Oh
    Posts
    1,399
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Debra C View Post
    HOLY CRAP !!!! What kind of insurance do you have ? When I was on Medicaid they paid the whole bill. I now have Anthem Blue Cross/Shield so I don't know what they would charge. But that is crazy
    Blue cross, but its a high deductable plan. Would be great if I could get healthy year to actually build up a balance in my HSA.

    The charge was about $38000 total, so the $5000 I paid is considerably more reasonable. But that is a huge chunk on my credit cards
    ~ Bob

  8. #8
    Join Date
    Apr 2010
    Location
    Dallas, TX
    Posts
    409
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Debra C View Post
    That article sounds promising.I would certainly rather have 1 infusion of rtx then go thru months of whatever !!
    Hi Debra, My point in bringing up both of these articles was to bring to focus that RTX (and similar drugs,) seem to be the focus of treatment for many autoimmune diseases, including vasculitis. That means fewer of our/insurance dollars will go towards other types of treatment (plasmapheresis, cytoxin, surgery), and more will go towards these more advanced biologic Rx's (and their own set of side effects). In the PubMed article, almost ten years of treatment/maintenance for rheum. arthritis is a very long time, and the results look promising.

  9. #9
    Join Date
    Jan 2010
    Location
    Yuma, Arizona 85364
    Posts
    952
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Palmyra View Post
    I am still having such a hard time, I am missing at least two days a week and am out of all my time off days. I feel like crap, the only benefit I see is that my joints don't hurt as much but I am also still on 50mg of pred. I did four infusions, one per week with the last one on 10/26. When do I start to feeling it? I had such bad diarrhea on Thursday night into Friday that I know I must have lost 10kg . Thinking makes me tired.

  10. #10
    Join Date
    Apr 2010
    Location
    Dallas, TX
    Posts
    409
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Oh Geez Lightwarrior.....I am so sorry for you to be feeling so very awful still! It sounds terrible. May I ask why you are still on such a high dose of pred?

    Was this your first time to be treated with RTX, and are you on any other drugs for maintenance?

    Many questions here...but it does sound as if you are struggling, certainly!

Page 1 of 3 123 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •