Quote Originally Posted by jsmith View Post
i didn't realise hearing loss was so common, can it be fixed at all!! im so fed up with not being able to hear my children speak to me, i keep thinking it'll return, but ive not been able to hear since may :-(
I know I've read on here about people losing their hearing and getting it back. I lost a good part of mine and am wearing hearing aids, and I may never get it back. It depends on the type of hearing loss and the amount of damage done by Wegs.

I know that at least a couple people on here are seeing Dr. Jayne at Addenbrooke's who was mentioned above. Do a search on those names and you'll probably find some of their posts. Phil lives in Canada so I presume his doc from Birmingham now lives in Canada, too.

You should still be able to see your ENT doc now that you are under a rheumotolgist's care. Most people have a team of docs, including the rheumy and pulmonologists, nephrologists, etc., depending on what parts of you are affected by Wegs. But I don't like the idea of them saying you were bothering them for nothing! Sounds like a good reason to find a new team. If you like your rheumy, but he's not a true Wegs specialist, perhaps he can consult with one who is, such as Dr. Jayne.