Hi Folks,
It seems as though a lot of you are on quite the drug cocktail. Initially, I received 4 RTX infusions when I was what I would like to call on death row. I do not believe I would be here without these infusions. If they had of tried something else, I would have been gone. I am thankful for that even though RTX was scary to me.
I was then put on prednisone and MTX, however I was taken off the MTX in August due to a lung issue. I have been on just prednisone and septra ever since - I also take some vitamins.
I mean, I guess I should be happy.. And I am - I'm feeling much better but it seems as though some of you who have had it longer even are on quite a bit of medication.
Does the RTX prevent me from needing all these other drugs? I don't want anymore drugs.. This is the best I've felt since I was diagnosed. My pred wean also seems fast.. I am dropping half a pill a week until I get to 5mg I think. I have only been on pred since June, but it's destroying my body... I'm not even kidding. I haven't gained a TON of weight but you should see the "striae"... It's bad. I might post pictures someday if someone wants to see them (but I dont know why they would). My clothes all still fit, but my skin just went super thin and well - it's not pretty. They hurt too. Anyone else have severe abdominal striae from pred and do they fade? I've got them in weird places (shoulderblades, etc) but they are worst on my sides. I don't have that many on my stomach, just a lot of small horizontal ones (weird), but the ones on my side are bad bad bad. I'm a little nervous to what they're going to do when the weight comes off.
I kind of got sidetracked from the original idea.. but it is what it is lol
Bookmarks