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Thread: Rituxan Protocols and Successess or Failures

  1. #41
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    Quote Originally Posted by Lightwarrior View Post
    I think I am getting scared and need to vent to you guys. Okay I'm done with my waa waa waa.
    There is NO 'wahwahing' in WG...oops, wrong movie...LOL...glad you vent Light...sometimes that IS the best medicine, clears our heads and hearts a little, perhaps enough to deal a bit better with the dawg...since it ain't going away anyway...best to you Light...you're a little crazy, but extremely tough! LOL! I've been in a funk over WG lately too and I'm feeling fine, well, better than recent times...but sometimes this crap just eats at you...it's another way for WG to get at us...don't let it!! OMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM!!!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  2. #42
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    So it's been about 6 months and I'm nervous. I'd love to get a year healthy, but honestly I'm starting to see little red flags. Had a wired Lumplike feeling in my throat. Got pretty dizzy after walking yesterday. And have a few tiny sores on my hands. Might all be coincidence, see the doctor at the end of the month so should know more then.
    ~ Bob

  3. #43
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    Any chance you can see the doc sooner? At least give her a call and let her know your symptoms.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    I don't think it's enough yet to be concerned. Just worried that Rex will wear off after 6 mos like last time.
    ~ Bob

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    Catching up on this thread.... Lightwarrior, how are you doing now?

    Bob, please let your doctor know. The end of the month might be too far away. You might just need to bump up a dosage of something to stop a flare.

  6. #46
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    Quote Originally Posted by Sangye View Post
    Catching up on this thread.... Lightwarrior, how are you doing now?
    Lousy health wise. My last day of working is this Friday December 14th. I am excited about that. I have filed for Long term disability. I have unfortunately had no benefits from the Rituxan. My rheumy told me that there is nothing else he can think of to do. He recommends that I go to a Wegs specialist. I hope to be able to do that right after Christmas. I have zero energy and have extreme chest tightness and difficulty catching my breath after standing for more than two minutes. I am just here in the office this week to hand off projects I was involved in.

  7. #47
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    Oh no, Lightwarrior. I don't like the sound of that at all. Can he order a chest CT?

    If you're gonna get to a Wegs doc (which, YAY) you might want to get an appointment set up now and start getting your records sent, etc.... Do you know where you'd go? I'm so worried about you, Light. I will keep you in my thoughts and prayers.

  8. #48
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    Quote Originally Posted by Lightwarrior View Post
    Lousy health wise. My last day of working is this Friday December 14th. I am excited about that. I have filed for Long term disability. I have unfortunately had no benefits from the Rituxan. My rheumy told me that there is nothing else he can think of to do. He recommends that I go to a Wegs specialist. I hope to be able to do that right after Christmas. I have zero energy and have extreme chest tightness and difficulty catching my breath after standing for more than two minutes. I am just here in the office this week to hand off projects I was involved in.
    Sorry to hear this but can understand your feelings and lack of energy. Have you contacted the nearest expert to set up appointments since it can take awhile to get in until you are an established patient or unless your referring doctor has good contacts to get you in quickly.

  9. #49
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    Lightwarrior,sorry to hear you are still feeling lousy but am glad to hear you will be off work,that will give you time to relax and maybe feel better .If I were you ,with your symstems,I would go to the e.r. and maybe they can find a dr. there with wegs.exp. and like Sangye said at least get a chest scan.Sure hope you feel better soon..will say a prayer for you.
    Life isn't about how you survive the storm, but how to dance in the rain !

  10. #50
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    Lightwarrior,
    ((((Hugs)))), good thoughts and prayers comming your way.

    Hope the specialist has an answer for you!!!

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