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Thread: Rituxan Protocols and Successess or Failures

  1. #11
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    Quote Originally Posted by pberggren1 View Post
    3 big infusions of solumedrol like that at first is more for severe Wegs. Probably 100 or 200 with each rtx infusion should be enough.
    Thanks, I have an appointment tomorrow.

  2. #12
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    Quote Originally Posted by Lightwarrior View Post
    Thanks, I have an appointment tomorrow.
    Good luck with it. Hope it goes well.

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    Hey Light...did your other treatments stop working for you? Why RTX now, new flares not controlled?

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    Quote Originally Posted by RCOSSIO View Post
    Hey Light...did your other treatments stop working for you? Why RTX now, new flares not controlled?
    Yes, I have never had a medication free flare and am now @60mg of pred again to back off a new flare. I had the rash, the excruciating joint pain, the snotty drip drip and unable to breath with any exertion. I have had to work through all of this since I don't want to sacrifice my time. Not easy, I basically am confined to sitting in my office with nurses stopping in to talk to me about any issues. I hate not being able to be out on the unit. I also hate being totally exhausted by 10:00 AM.

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    Quote Originally Posted by Lightwarrior View Post
    Yes, I have never had a medication free flare and am now @60mg of pred again to back off a new flare. I had the rash, the excruciating joint pain, the snotty drip drip and unable to breath with any exertion. I have had to work through all of this since I don't want to sacrifice my time. Not easy, I basically am confined to sitting in my office with nurses stopping in to talk to me about any issues. I hate not being able to be out on the unit. I also hate being totally exhausted by 10:00 AM.
    Oh and he increased my mtx back to 25mg from 15mg. Since I have yet to have a medication free remission and have only had short remissions i figure that Rituxan is worth a shot

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    60MG of pred....WOW! That's high....I received 60mg of pred when I was first diagnosed. Hope RTX does the trick!

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    Quote Originally Posted by RCOSSIO View Post
    60MG of pred....WOW! That's high....I received 60mg of pred when I was first diagnosed. Hope RTX does the trick!
    Me too, this is no fun for me or the people I work with. They have permission to tell me "spin" and I know I need to slow my thought process down and stop making THEM crazy

  8. #18
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    You are in my thoughts and prayers, Light. It is very frustrating not working and still wanting to contribute. I gave up my dream job at the end of June and continue to try and adjust to the quiet life! I hope you can keep going! Good luck with your treatment!!

    KB
    KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell

    Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.

  9. #19
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    Quote Originally Posted by Lightwarrior View Post
    Me too, this is no fun for me or the people I work with. They have permission to tell me "spin" and I know I need to slow my thought process down and stop making THEM crazy
    I found it tough to function at those levels and felt rather hypomanic and emotional much of the time. Plus the horrendous pred snack attacks and bouncing blood glucose levels all over the place. It certainly is not a good time and it is good you have colleagues to help you stay grounded enough to still work. I know I couldn't have done so. hope things improve quickly for you.

  10. #20
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    Light, the 3-day pulse steroids are only if you're having a severe flare in which you need the massive pred to save your life--eg lung hemorrhage, kidney failure. It's hard to know if you should do the 2 infusions a week apart or the 4 infusions. If you're experiencing a bad flare I suggest doing the 4 infusions. Also, if you're on the heavier side like me, there is a sizeable dose difference between the 2 protocols since the 2-dose protocol uses 1,000mg for each while the 4-dose protocol is weight-based.

    Before the infusion you should be given benadryl and at least 80 mg solumedrol. Dr Seo gives me 100 mg solumedrol but said he wouldn't give less than 80 to anyone.

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