Hi,
My name is Robyn. haven't got Wegeners but my partner, Philip, does. He was diagnosed approx 6 years ago, when he was 36 years old.As I wasn't with him at the start I am still learning the ins and outs of this disease. He has been having infliximab infusions for the last 6 months and that seems to ease the symtoms for a couple of weeks after each infusion. It's the other weeks that we are having trouble with at the moment.
Anyway, I'm very pleased to have found this site as my medical ignorance is catching up with me. I have found it very useful already. It's nice to know others' stories.
We are going to Princess Alexander for another infusion tomorrow and hopefully Phil will be able to get some quality sleep after this.
Robyn
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