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Thread: Decreasing support and how to find more support.

  1. #41
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    Quote Originally Posted by vdub View Post
    I, purposely, don't have a lot of friends and I'm not in any "clubs". My closest friend is my wife. We do almost everything together and have a lot of fun doing it. However, she is more social than I am and she does go to book clubs and that sort of stuff.

    I don't have a lot of friends or belong to clubs because they can be a drain on your life and they create future commitments that I might not be able to keep or might not want to keep. I have 2 very close friends locally and 3 or 4 close friends at a distance (1,000 miles or more). These are the type of friends I can confide in and the ones that understand when I say I'm not up to doing such-and-such. We talk on the phone often.

    My social network is this forum and several lists of e-mail friends. But my best friend is my wife.
    This has some good advice which I appreciate since i have to remember to not try over do things. Over scheduling myself can create problems and use up my "spoons."

    Are you more socially active recently when you are feeling better? Have you met or made any new friends since this post?
    Knowledge is power! Wisdom is using it to make good decisions!

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    Anyone close to South Tx??

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    I noticed the same thing. when I was so ill I couldn't so much as set up I had all kinds of people show up to visit now I just set hear unable to find work and alone. Sometimes I wonder if its me though, between the PRED. and everything else maybe I just chased them off.

  4. #44
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    It is interesting to me how people find these old threads that have been inactive for months or even years and read them and identify with the content and then reactivate the thread by posting a comment. It was interesting for me to read this again over two years later since I started this thread. My situation is about the same as my last post in May of 2014. I like to go to various activities and entertainment that are low energy events and I am always on the look out for another new friend or even a new best friend or female companion. I try to keep in touch with the old friends and visit a lot with other people in my apartment building and try to partake in many of our building social activities. I often organize or plan events for some of my friends here, as I am the youngest one in our senior housing complex. I try to plan things that can fit in between my many medical trips and appointments like an outing some where to enjoy some Irish food for St. Pat's Day.

    I guess my doctors and nurses are also an important part of of my social support system since I rely on them for assessment and advice on managing my chronic illnesses. One advantage of being a frequent visitor at various medical facilities is the staff recognize you and greet you like an old friend and it speeds up the registration process. Two doctors have also given me direct numbers to reach their nurses in case I need to contact them for an emergency which is a nice perk too.
    Knowledge is power! Wisdom is using it to make good decisions!

  5. #45
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    Quote Originally Posted by sbeach78 View Post
    I noticed the same thing. when I was so ill I couldn't so much as set up I had all kinds of people show up to visit now I just set hear unable to find work and alone. Sometimes I wonder if its me though, between the PRED. and everything else maybe I just chased them off.
    I think pred causes mood change that can be confusing to the people around us. Another issue I went through briefly was the depression that followed from the losses causes by my Wegs. This lead to a period of being isolated and withdrawn too. Not being able to hear for a couple years until I got my BAHA also made any group social activity difficult or impossible too. Some people can understand and accept such limitations and those are the ones worth keeping in one's life.
    Knowledge is power! Wisdom is using it to make good decisions!

  6. #46
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    drz,its sounds like you have come a long way since you first posted that thread. You seem to socialize quite a bit within your community.I think having your hearing back has made a world of difference for you.
    I think pred ( and all this other meds ) changes us all in someway. I can't believe the guy I am seeing has stayed with me for 14 yrs. I know I wouldn't stay with me with all the [email protected]#& I give him and my the tone in my voice has changed to where people think I have an attitide about things sometimes.

    I don't know,we are not the same people we used too be and that is sad. But on the bright side things could be worse.
    Life isn't about how you survive the storm, but how to dance in the rain !

  7. #47
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    As Pete says, even just retiring brings social changes. I wonder if you could do something that keeps me socially active with friends. We are all retired, but I think it could be arranged to work with a mix of retired and working friends. Here is what we do. Some folks who retired about 8years ago, set up a regular lunch for all retirees from our school district. It is very simple. you choose a regular day and time , such as the first Tuesday of the month at 12 noon. It could be set up for dinner time as well. You find a restaurant that is willing to set up a reservation for an ever changing number of people. The restaurant we meet in sets up tables and chairs for about 16 folks. Sometimes there are 6 of us.....sometimes there are 14 or more. No one is in charge. We just show up, and whoever is there has a great time. It might be a little tricky at dinner time...but as long as it is a large restaurant, and it is on a typically slow week night, it should work for most people. Worth a try. We love it.
    Jacquie (aka Lifelong Booknut)

    Updated status: "Honorary Weggie"

  8. #48
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    All this talk of isolation, loss of friendships, and changed tones of voice hits home with me, too. Although I do see enough people in the course of what I do to not be too isolated. But I must say that this forum has been a blessing in sending me lots of new friends who understand the issues of having WG. Deb, your boyfriend is obviously very devoted to you, to stick around for so long! You are lucky in that respect, and I'm happy for you. He must be a pretty patient guy who doesn't want to lose you.
    Anne, dx'ed April 2011

  9. #49
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    Quote Originally Posted by annekat View Post
    All this talk of isolation, loss of friendships, and changed tones of voice hits home with me, too. Although I do see enough people in the course of what I do to not be too isolated. But I must say that this forum has been a blessing in sending me lots of new friends who understand the issues of having WG. Deb, your boyfriend is obviously very devoted to you, to stick around for so long! You are lucky in that respect, and I'm happy for you. He must be a pretty patient guy who doesn't want to lose you.
    Well Anne,you certainly have alot of friends on here and you know even though you live alone ,you are never alone with us !! I wished we lived closer so we could hang out and I could buy some of your pottery !
    As for Jack ( my boyfriend ) I think hes just nuts !!
    Life isn't about how you survive the storm, but how to dance in the rain !

  10. #50
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    Quote Originally Posted by Debra C View Post
    Well Anne,you certainly have alot of friends on here and you know even though you live alone ,you are never alone with us !! I wished we lived closer so we could hang out and I could buy some of your pottery !
    As for Jack ( my boyfriend ) I think hes just nuts !!
    That would be great, Deb. I need to get my life in order so someone could even stay with me if they were in the area. And I need to get my pottery online so forum members can even look at it. Would love to send someone a coffee mug or two but am not even well organized enough for that right now! And I doubt if Jack is nuts, just knows a good thing when he sees it!
    Anne, dx'ed April 2011

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