Facebook

[gwenllian111]

I liked to WG groups on facebook, but if you don't mind i'll keep in touch with you all on here from now on.

Facebook is quite creepy, in my opinion, and I just don't like it.

Good luck if you ever try to delete your account - it's near impossible!

Best wishes,

Gwen

[pberggren1]

I see you have had some weird experiences as well on the vasculitis groups on facebook Gwen?

[gwenllian111]

I see you have had some weird experiences as well on the vasculitis groups on facebook Gwen?

Yes, after I was dx, I strongly believed in the afterlife and in guardian angels!

Did you?

[mishb]

I certainly do love reading some of the replies ........ and questions for that matter

I hardly ever answer any of them unless it's something I can help with of course ......or to you or Phil

[pberggren1]

Ya, I had some weird experiences and was kicked off a couple of groups.

[Lightwarrior]

Ya, I had some weird experiences and was kicked off a couple of groups.

Not you my friend, were they crazy?

[pberggren1]

Not you my friend, were they crazy?

Most certainly.

[mishb]

I read the one that Phil was kicked out of - things were taken out of context, that's all.

I wish everyone was on here for them to see that some things they are being told on fb, is not necessarily the best advice.........or is the best advice, but they don't want to take it on board anyway
.......but it is facebook

[pberggren1]

I know what you mean Michelle. I know 2 other people that were kicked off that one group too through no fault of their own. That is why I like this group much better. The people are AWESOME and the Admin is one SWEET DUDE.

[drz]

The main complaint i heard about FaceBook was people having their email accounts hacked after they signed up and all their contacts getting spammed. Was it a requirement to use FB that they got access to your contact list and did your contacts end up getting lots of spam email?