I'm so glad you have reached the point where this is possible and are getting full support from your docs! I'll be interested to hear all about the process as it unfolds, since I have a saddle nose, and although I don't know if I'll ever get it fixed, I can at least experience it vicariously through you!!
Anne, dx'ed April 2011
Hope the surgery goes well and yields great results. I know I felt good about completing my four surgeries in past 10 months to try repair some the damage from Wegs and it's treatment. The repair should really help your morale.
Great news. Wishing you the very best of luck with the surgery and hope you will be very happy with the results.
Happy Days ahead!
Thanks All For your well wishes It means alot , And will do my best to keep you all in formed . 21st of This month I go back .. I never though I would get to this stage But here i am ! Wegners is a long road .
Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .
congrats. I had the surgery in febuary this year. it really is worth it. The surgery is a long time I was under for close to 7 hours. they used rib bone, rib cartlidge, and a metal plate for me. my damage was very bad. I have found that yeah my nose is still very tender but it is very close to what I use to have. I can look at my self now.
Woohoo, Natalie! Hope all goes well for you!!
KB
KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell
Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.
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