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Hello all. I was officially dx'ed last week. It has taken a year to get this far. My neurologist was the first to suspect I needed to see a specialist. The random ENTs, pulmonologists, infectious disease specialists, immunologists, etc. were all confused. Even the first rheumatologist was unequivocal that I could not have WG because my ANCA was not abnormal. About that time I found your forum, you all give such wonderful advice. I cannot thank you enough. By the time I got an appointment with a WG rheumy, I was worse, but I had someone who took me seriously.
The day I was officially diagnosed I felt almost relieved. I finally have an answer and a plan. The meds are obnoxious, but I'm getting by. Thanks again for sharing your knowledge, without you, I wouldn't have known to ask some important questions.
Rachel - dx'ed seizure disorder 1999, dx'ed WG 07/26/2012
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