Did first round of Rituxin... whats next... NEED HELP!

[Lightwarrior]

yes that would be great...thank u. and the above thing i said was in reply to AL, first time using a forum. but got the hang of it.

I agree that you need a Wegs specialist fast. You should not have to make medication and/or treatment decisions. I know that you can get a free consult from the Wegs specialists on the Vasculitis web site. They will talk to your doctor.

I am glad that you found us. We all need each other.

[Palmyra]

i did my first round of rituxin in feb and had no side effects and now i am taking 7.5 mg of prednisone and i feel fine now. i see my doc again in 2 months and she wants me to look up dif medication to see if i want to do another round of rituxin or take other medication... need help? i read about other medications but i wanted to know what yall think or what yall think i should do... or whats best?

a lil about me wegeners effected my upper respitory tract, my trachea, inflammation in my brain, eye problem, weakness, weight loss... and i also have type 1 diabetes.

please help!!!!!

Your Doctor wants YOU to look up information on medications? That might be best for you? I do not think that is a good idea at all. None of us on this site are trained physicians, and may steer you in a very well intentioned albeit very wrong direction.

I think that is a very important question, and one that your doctor should be very specific about his/her treatment recommendations. Then they should offer you the opportunity to make some informed choices, with his/her assistance. A second opinion should come from a very knowledgable source, solidly educated in medicine and with autoimmune vasculitis in particular.

[Al]

Lupita, I think Jane's advice is perfect. In all cases, a vasculitis specialist really needs to be involved. Please let us know how this works out.

Al

[lupita]

Does anyone know any specialist near atl ga.

[lupita]

How do i get a free consultation?? Thats what i thought too

I agree that you need a Wegs specialist fast. You should not have to make medication and/or treatment decisions. I know that you can get a free consult from the Wegs specialists on the Vasculitis web site. They will talk to your doctor.

I am glad that you found us. We all need each other.

[pberggren1]

Does anyone know any specialist near atl ga.

Contact the Vasculitis Foundation.

The website is: Vasculitis Foundation | The Vasculitis Foundation supports and empowers patients through education, awareness and research.

They will have a list of docs for you. And I will message my friend near Atlanta to see if I can give you her number. She has a really good doc there.

[Al]

What Phil said, Lupita. The closest vasculitis center to you is, I think, in North Carolina (Chapel Hill), which is still a drive. But you doctors on the list will consult with your doctor.

Al

[lupita]

next month i see my rhuemy and its either doing rituxin again or mtx???
would like to do it the natural way butttt dont know if there is any...

but i am feeling fine now am on 2.5 mg of prednisone no symptoms of any kind. just hair loss from prednisone but nothing else.

[Marilyn]

I am scheduled for my first round of Rituxin, July 22. I have been on immuran for 2 years and have pretty good results until my MD decreased my dosage down to 25mg, (I initially started on 100mg) and I started having these "spells", shaking uncontrollably, breaking out in sweat all over my body, nauseated, one time I couldn't move my legs and I went to sleep or passed out and when I awoke was better. being a nurse, I thought I was having low blood sugar, but had just eaten each time. I hadn't received my labs yet, but Dr. Had ordered an ANCA which was about 10 times greater than 8 months ago. It had been 70, my last one was 670! Me raised my immuran back to 75 mg. had more blood work and my liver numbers had increased and Dr. Is afraid it is the immuran. So he suggested finding out about this new med for me with the hope of remission. I hated taking prednisone and am hoping I won't have too. Any comments/advice on high liver numbers and meds? I have been taking Tylenol, but I have reduced from 1 to2 tabs, I also take ultram for pain. Thank you all for any information. Marilyn Maxwell

[Palmyra]

... had more blood work and my liver numbers had increased and Dr. Is afraid it is the immuran. So he suggested finding out about this new med for me with the hope of remission. I hated taking prednisone and am hoping I won't have too. Any comments/advice on high liver numbers and meds? I have been taking Tylenol, but I have reduced from 1 to2 tabs, I also take ultram for pain. Thank you all for any information. Marilyn Maxwell

Hi Marilyn....my daughter developed acute pancreatitis while on immuran. It was potentially life threatening, required surgical stents and involved a protracted & long recovery. Some can take it with no biliary/hepatic side effects, others evidently not. Listen to your lab numbers and your docs. No one on this site likes taking prednisone, but sometimes its a life saver. Best wishes to you and do keep us posted per your results!! PSWatch tylenol and all NSAIDS...they really can mess with large organs/kidney/liver)...drink your water