Oral Chemotherapy May Start Getting Covered by Ins. in TN

[Al]

We get what we vote for. That's all I'm gonna say.

No fair, Sangye! I didn't vote for "them" ...Oh, you mean in the collective. Yeah. Sorry, in the collective....

Al

[newweg]

Don't want to sound dumb dumb, but a friend commented to me I am on chemotherapy...I never thought of it that way but is that correct?

[newweg]

taking methotrexate

[pberggren1]

Technically ctx, mtx, and aza are classed as chemo drugs. And CC is almost in that category as well.

[newweg]

Wow, so it is I am on chemotherapy for life!

[Red]

I am sick and tired of being sick and tired of being sick and tired of being sick and tired again lets repeat lol of drugs

[Dryhill]

Yes Newweg, MTX is given in much larger doses as an anti-cancer drug and can have some very nasty side effects. What strentgh are you taking and are you having regular blood tests to check there is no build up in your liver?

Jim

[newweg]

I just started 3 weeks ago, I take 7.5 mg once a week. The plan is to increase by doubling dose every 6 weeks for about 3 months. Yes, I have regular blood work to monitor. After 3 weeks we will try to wean me off prednisone, and hopefully stay off. If the MTX helps in reducing my symptoms, my rheumy hopes after 2 years on MTX I will go in remission. I have brain lesions and my sinuses are mostly affected, they believe the brain lesions are from wegs. One is on brainstem and I can not afford for it to grow. I see Dr. Meclker from Boston at HUP end of June. So his opinion will mean a lot. Don't most wegs take MTX?

ps) why can't I upload a picture? It states it is but when I try to add to profile or album, all goes away!

[Al]

I just started 3 weeks ago, I take 7.5 mg once a week. The plan is to increase by doubling dose every 6 weeks for about 3 months. Yes, I have regular blood work to monitor. After 3 weeks we will try to wean me off prednisone, and hopefully stay off. If the MTX helps in reducing my symptoms, my rheumy hopes after 2 years on MTX I will go in remission. I have brain lesions and my sinuses are mostly affected, they believe the brain lesions are from wegs. One is on brainstem and I can not afford for it to grow. I see Dr. Meclker from Boston at HUP end of June. So his opinion will mean a lot. Don't most wegs take MTX?

ps) why can't I upload a picture? It states it is but when I try to add to profile or album, all goes away!

Susan, I don't take methotrexate, as I have severe renal involvement, and MTX is not kidney-friendly. I do take azathioprine, however.

Is it Dr Meckler the neurologist you are seeing? He does know of your vasculitis, right?

Pictures: These can be tricky. First, you have to be posting, Then, enter the "Go Advanced" Mode. Then scroll down to "Manage attachments". Then follow the directions. Even then, it is a bit confusing. "Add" an attachment, upload it, and then you can copy what you have uploaded to your post, or any later post. Hope this helps!

Al

[newweg]

He is rheumatologist, I have never seen him before. He specializes in Wegs but I do not know if he knows as vasculitis.