New Member

[mickoko]

Hello Everyone,
Hi, my name is Mick and I have had WG since 1998.
What a few years of fun it has been since then, up,down,up and down.I was first diagnoised with WG as I had a pain come in my side and was then hospitalized for a few weeks as they struddled to find out what was wrong with me. Eventually, a (great) Doctor came to see me and knew what it was I had got. I was put on Cycophosphomide and prednisolone for the next year or so and everything seemed to be going ok. How Wrong I was.
Shortly after, I was feeling a bit under the weather one weekend and went to my bed until the monday morning, when my wife then phoned the hospital to tell them I was ill. I went to the hospital that day and that was the last I knew for 3 weeks. My lung collasped, my kidney failed and I was in a coma for those 3 weeks until my body made a slow recovery. As I made a recovery, I was told I was very lucky to have pulled through, which has now changed my whole outlook on life.
I am still having the usual problems, nasal ,eyes (both eyes having cataract`s removed and a bad eye infection for the last 2 months), sore throat all the time, pains in my body as a whole, and this eternal cough.
I am now on mycrophenolate, atenalol, alloupinol, pred injections and generally tablets for illnesses as they come along (even gout tablets as I have now developed gout every 3-4 weeks just to hit me a bit more).
At the moment, I am doing ok (ok for mick is the doctors famous saying).
Hospital every month for blood tests, every 2 months to see the specialist and every 3 months to see the kidney specialist, but I know it has to be done to keep it under control. I now look at life in a happy way, and smile as often as I can. Even the doctors call me Mr Happy.
To Everyone out there with WG, keep going and never give up on life.

[KtheC]

Glad to me you Mick, and welcome

[crackers]

hello mick and welcome aboard.you've come to a good place.
john.

[Derek]

Hullo Mick welcome to the site. I have found it very helpful.

Derek

[jola57]

Hi Mick and welcome to our little community. I am glad you are Mr. Happy in your outlook, it makes a world of difference in everyday life.

[mickoko]

Thank You to all who have wished me a welcome, its good to see and hear from people with our condition. Usual when i tell people what is wrong with me I just get wegener`s what!
Even 3 weeks ago at the hospital I go to, I went to see the eye specialist and the first thing I got was "have you still got that Wegeners disease now".
I won`t tell you what I said to him, but he didn`t ask me again.
Once again thanks and hello to everybody.

[Sangye]

Hi Mick,
Glad to have you here. Can't believe your eye doc's question. Did you ask him if he still had his medical degree?

[jola57]

This had me chuckling

[mickoko]

No I Didn`t ask him if he had a eye degree, i just asked him plainly if he could read or not.(as he had 3 of my full patient files in front of him and he was looking also at my file on his computer).
This is not the first and only time I have been asked that question also. Some doctors just can`t read!

[andrew]

Hi there Mr. Happy and welcome! You have a great attitude, keep it up and keep smiling. Often that's all we have the energy for

Yes, it's a hard disease to explain and I find many people's eyes tend to glaze over after the first couple of sentences. I think I need an 'elevator pitch' that gets the point across in 20 seconds or less

Love your doc's question!