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Thread: New old guy on the block

  1. #81
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    Default Re: New old guy on the block

    Scheduled to get 1000 Rituxin feb 1. I need it, so I will wait another 3 months for vaccine. If I wanted vaccine now, couldn’t get appointment until Feb, then another 19 days for 2 nd one. Then wait 2 to 3 weeks after for vaccine. So I think Rituxin, wait 3 mo. get vaccine is my best option.
    I got to 7.5 prednisone and could feel my throat and chest problems, went back to 8, took daily Bactrim, then it turned into head cold. Will stay at 8 for a few weeks, then try slow decrease again. For people who have been at 60 or 40 this sounds crazy, but getting down from 10 after 3 years is a challenge.

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  3. #82
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    Default Re: New old guy on the block

    Quote Originally Posted by Masha View Post
    Scheduled to get 1000 Rituxin feb 1. I need it, so I will wait another 3 months for vaccine. If I wanted vaccine now, couldn’t get appointment until Feb, then another 19 days for 2 nd one. Then wait 2 to 3 weeks after for vaccine. So I think Rituxin, wait 3 mo. get vaccine is my best option.
    I got to 7.5 prednisone and could feel my throat and chest problems, went back to 8, took daily Bactrim, then it turned into head cold. Will stay at 8 for a few weeks, then try slow decrease again. For people who have been at 60 or 40 this sounds crazy, but getting down from 10 after 3 years is a challenge.
    My experience is that tapering the pred meds when you get under 10 mg is a real challenge. It does not seem like a 1/2 mg or 1 should be that big of a change after I dropped by 5 or 10 when I went from 50 to 40 or 40 to 30 but my body often seems to say whoa and complain many times and says slow down or go back up. I am currently at 6 1/3 and hoping to get back to 5 or 6 again some time this year.
    Knowledge is power! Wisdom is using it to make good decisions!

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