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Thread: New old guy on the block

  1. #41
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    My gosh Al ,you are so knowledgeable..I should just come see you instead all my docs , you seem to know alot more than they do !!!

  2. #42
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    Quote Originally Posted by Debra C View Post
    My gosh Al ,you are so knowledgeable..I should just come see you instead all my docs , you seem to know alot more than they do !!!
    Actually, Debra, no.

    Doctors, for the most part, are quite knowledgeable. My beef with the medical pros has nothing to do with their intelligence or experience--which is far greater than mine, but that the intelligence gap is 1) perpetrated, taken for granted, and, often, even celebrated; and 2) it encourages and perhaps requires a specialist system that gives short shrift to a full and detailed understanding of a real patient's situation. In other words, the dynamics of being a doctor these days make it hard to spend a lot of time thinking about individual patients. They simply cannot take the time for detailed work, or to bring the patients fully up to speed concerning their ailment. So they fall into saying the easy and platitudinous things.

    Al

  3. #43
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    I've just noticed something. I tapered down to 6 mg/day of pred this past Saturday. Finally, my appetite has returned to something more like it was before dx. I haven't had an evening snack since Monday. Hope this along with continued exercise will finally help me lose some of the "pred pounds".
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  4. #44
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    Methinks I spoke too soon. This morning I feel achy, having some light chills, and general fatigue. Waiting for Dr. Villa Forte to return my call.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #45
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    This may be a stupid question but how does one know when they are generally having a flare or just being "plain" ill ?
    Life isn't about how you survive the storm, but how to dance in the rain !

  6. #46
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    Quote Originally Posted by Debra C View Post
    This may be a stupid question but how does one know when they are generally having a flare or just being "plain" ill ?
    Some times you don't. Lab work helps as does hind sight as you build your history of managing your treatment. Flares could get worse unless treated and other illness tends to get better or go away without any extra treatment for GPA. Sometimes your residual symptoms ebb and flow especially when tapering meds and you can just wait them out. Flares and infections often go together for me but doctors don't know if the flares cause the infections or the infections cause the flares or if they just happen to occur together.

    Paying attention to your individual history helps you learn how your body reacts to things. But don't assume it will always follow the same patterns as before. That is how some people end up dead because things can change quickly into something new and something serious. It is always best to review any changes and especially new symptoms with your trusted doctors that seem invested in your good health. I don't think you can always tell the difference between a flare and being sick or having symptoms for other reasons and I have pondered over this issue twice this month and so far it looks like my symptoms are not Wegs yet. Last month the flu shot gave me symptoms that made me ponder this question.

    Stay tuned in to your body and heed your gut instincts.
    Last edited by drz; 11-17-2012 at 04:48 AM.

  7. #47
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    Got to feeling better as the day progressed. Spoke with the doc, and she thinks I have a virus. Feeling close to normal now, so will gently ease into the planned festivities of my day.

    Dr. Villa Forte was glad I called. I'm supposed to call her back on Monday to let her know how I'm feeling. I think she subscribes to the better safe than sorry school of thinking about when to call about possible flares.

    Thanks to all for the encouraging words.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  8. #48
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    I caught bronchitis in Feb. Was scared to death it was a flare with all the WG coughing and stuff I do anyway. Rheumy was very controlled and calm, sent me to my internist...it WAS bronchitis, cleared up in 7 days with meds...sheesh. But, one can, nor will I ever, not ignore anything that comes our way...as your doc says, better safe than sorry. Best of luck!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  9. #49
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    I had a moderate cold recently, my first "bug" since WG dx in April 2011. I could tell the difference. 3 days of mild but persistent sore throat followed by heavy coughing and extra nose blowing. I know others who had it around the same time. It went away before long but I think it stirred things up a bit, as I'm still coughing and feeling out of sorts, but it gets better every day and now just feels like WG. There is more blood in my nose than before, which concerns me. I will be getting blood tests and a chest xray in a couple weeks and will talk to the doc about it then.
    Anne, dx'ed April 2011

  10. #50
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    Hi Anne,

    Glad to hear you're feeling a bit better, but worried about the continuing wegs symptoms. Any chance you could get labs and the chest x-ray sooner before the symptoms get worse?
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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