So, the Mayo Clinic says the proper pronunciation of Wegner's is VEG-uh-nurz gran-u-loe-muh-TOE-sis
Wegener's granulomatosis - MayoClinic.com
So does that make us veggies? :-)
So, the Mayo Clinic says the proper pronunciation of Wegner's is VEG-uh-nurz gran-u-loe-muh-TOE-sis
Wegener's granulomatosis - MayoClinic.com
So does that make us veggies? :-)
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
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I remember hearing it pronounced the correct way numerous times early in my hospitalization and before dx and finally asked the staff to spell it! Sounded like my Austrian/German family members speaking!
I like Weggies better than Veggies.
Anne
I like the proper pronunciation because it sounds like "Vague" which is a perfect description of Wegs. But I'm not gonna use it. People have a hard enough time with the Wegs name.
I've always done it the propper way. But when I talk with you guys or my doc I just call it Wegs.
Phil Berggren, dx 2003
I think Veggies would be OK as long as no one thinks we are talking about vegetables.
Anne
I like Weggies. If we become Veggies we'll have to totally re-brand ourselves and it'll become confusing for people thinking we're vegetarian.
When i tell people my diease i say its pronounced Vague-ners but spelt W-E-G-E-N-E-R-S, they look at me like i'm trying to be funny and i laugh and say, "no, really thats how its spelt!"
"I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack
Tha bad news is that whichever way we say it it does not go away or get any better!!!!
I think they changed the name to GPA because they couldn't agree on the pronunciation for Wegener and it had nothing to do with his early Nazi membership.
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