I'm going to the Chicago Vasculitis Foundation 2012 Symposium. If you were going, what question would you ask ?
Here is the link for anyone interested: Knowledge. Community. Power. The 2012 Vasculitis Symposium - Chicago | Vasculitis Foundation
I'm going to the Chicago Vasculitis Foundation 2012 Symposium. If you were going, what question would you ask ?
Here is the link for anyone interested: Knowledge. Community. Power. The 2012 Vasculitis Symposium - Chicago | Vasculitis Foundation
Most questions I have are going to be answered, when I read the programme.
Sounds very interesting, especially 'State of the art for treatment of vasculitis'.
Would be wonderfull if you were able to write a report when you come back!
Thanks for posting Trudy!
Are you married?
Phil Berggren, dx 2003
I think many of us are wondering about treatment dosage for Rtx ... and the research to support.
KB
I am interested in state of the art for treatment of vasculitis...also:
B-cell Based Gene Therapy for Aut... [Infect Disord Drug Targets. 2012] - PubMed - NCBI Genetic modification for treatment of AI disease. Could this be the route to an actual cure?
And Phil...who were you asking if they were married!
No one in particular. A cute doctor maybe.
Phil Berggren, dx 2003
I would love if the question about life time maintenance drugs vs. attempts to go drug free were asked again. I think both Merkel and Seo agree on this one -- and I'm sure that the question will likely come up.
Trudy..I looked at the website you posted and saw who was speaking and it turns out that the rheumy I see at Cleveland Clinic will be there...Dr.Gary Hoffman..he was the one who first prescribed Imuran (100mg. daily) and never mentioned that tpmt blood test either.When I called him I couldn't take it he said it was probably my anxiety and try again. I didn't until this other dr. told me to take 50mg.and thats when I started having more problems. So u might want to ask him if he feels that blood test is necessary..just to see what he says just don't tell him about one of his patients I don't want him figuring out it was me because I'm gonna go try to see him after the conference..maybe he'll have some new ideas for me to try.
I would like to know what the long term effects for RTX could be. Its a treatment still in its infancy with the long term effects still not really documented.
Why is there an American and British protocol? Is 4 infusion better than 2? And how long should the maintence doese be given for?
"I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack
My question is the same as freakyschizogirl.
You give but little when you give of your possessions. It is when you give of yourself that you truly give. Kahil Gibran
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