me2 you state "My doc says he knows someone in the UK who has been doing this for a long time and has had good results" . I believe Dr. Jayne at Addenbrookes Hospital, Cambridge (the UK's leading centre for Vasculitis research) has had quite a bit of success with administering five infusions of RTX, one infusion is given every six months for two years.
I doubt you will find the sort of information you want as different doctors/hospitals have different ideas as to the best treatment. My doctor wanted me to have four infusions (he seems to think I am a trifle overweight, damn cheek I am not quite 300lbs so almost a stick!) but the accountants that run the hospital and clearly know best said no only two infusions.
Jim
You give but little when you give of your possessions. It is when you give of yourself that you truly give. Kahil Gibran
Bookmarks